We’ve seen this theme touched on by some people on this forum so thought we would create a specific post on anticipatory grief and hope that this will encourage people to share their experiences.
Anticipatory grief happens when feelings of loss occur before a death, but this is often not acknowledged, talked about or even understood. Being given a diagnosis of MND can trigger anticipatory grief in both the person with MND and their family and friends. MND can bring a range of losses during the progression of the disease as well as ultimately death and so anticipatory grief can be a significant part of being affected by MND.
A wide range of emotions can be felt including anger, love, depression, anxiety, guilt, mourning, fear, and loneliness. Anticipatory grief can be confusing, and it doesn’t mean you have given up on yourself or your loved one but it does allow you to prepare for losses and death and provides opportunities to spend meaningful time with loved ones.
Here are some links we think might help:
https://www.thegoodgrieftrust.org/ne...vement-advice/
https://www.hrrv.org/blog/anticipato...efore-a-death/
https://samaritannj.org/hospice-blog...ipatory-grief/
https://www.bacp.co.uk/bacp-journals...-young-people/
https://www.mndassociation.org/suppo...ement-support/
Anticipatory grief happens when feelings of loss occur before a death, but this is often not acknowledged, talked about or even understood. Being given a diagnosis of MND can trigger anticipatory grief in both the person with MND and their family and friends. MND can bring a range of losses during the progression of the disease as well as ultimately death and so anticipatory grief can be a significant part of being affected by MND.
A wide range of emotions can be felt including anger, love, depression, anxiety, guilt, mourning, fear, and loneliness. Anticipatory grief can be confusing, and it doesn’t mean you have given up on yourself or your loved one but it does allow you to prepare for losses and death and provides opportunities to spend meaningful time with loved ones.
Here are some links we think might help:
https://www.thegoodgrieftrust.org/ne...vement-advice/
https://www.hrrv.org/blog/anticipato...efore-a-death/
https://samaritannj.org/hospice-blog...ipatory-grief/
https://www.bacp.co.uk/bacp-journals...-young-people/
https://www.mndassociation.org/suppo...ement-support/
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