Poetry - Motor Neurone Disease Association Forum

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Bexxy

Forum Member

Join Date: Aug 2019

Posts: 65
#1

Poetry

9 May 2021, 08:04

I wanted to share with you the poem I selected for my husband Tim’s funeral last month.

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Positive vibes

Forum Member

Join Date: Mar 2021

Posts: 430
#2

9 May 2021, 08:28

Hello Bexxy

I am so sorry to read about you losing your husband Tim. That is beautiful.

Carer for Dad - MND (ALS) 22/4/21 and Mum Alzheimers 26/5/21.

Girding my loins and grinding my battle axe for them both... https://forum.mndassociation.org/cor...ilies/wink.png
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Bowler

Forum Member

Join Date: Jun 2020

Posts: 1770
#3

9 May 2021, 08:34

Beautiful Rebecca 🤗
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Gordan1111

Forum Member

Join Date: Jan 2021

Posts: 575
#4

9 May 2021, 09:21

xx thank you
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Ellie

Forum Member

Join Date: Oct 2012

Posts: 9939
#5

9 May 2021, 12:08

Thanks for sharing the poem, Rebecca. It's good that you found words which reflected your feelings.

Love Ellie.

Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Heather R

Forum Member

Join Date: Jul 2020

Posts: 1260
#6

9 May 2021, 20:06

Thanks for sharing, Bexxy. Things must feel very raw and painful with the funeral only a month ago, sending love and hugs x

Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!
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Deb

Forum Member

Join Date: May 2018

Posts: 1818
#7

9 May 2021, 20:48

Lovely poem, Rebecca. Thank you so much for sharing this with us,
Take care of yourself,
Love and hugs,
Debbie x
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denise

Forum Member

Join Date: Jun 2020

Posts: 6688
#8

10 May 2021, 06:54

That was lovely Rebecca thank you for sharing.
thinking of you and sending lots of love and hugs Denise xxx

when i can think of something profound i will update this.
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