Hello,
My mum is called Sarah, she was diagnosed with MND in 2012 while I was 16.
At the start I was completely terrified of losing my mum, she was the kindest person in the world and the care and compassion she possessed knew no bounds.
I was scared that her body would betray her and she would be locked in a prison of frustration and sadness.
I was upset that she would not be there to see me leave school, be at my wedding or hold her grandchildren.
But my Mum wouldn’t let such a horrific disease get the best of her. She fought every step of the way and 9 years down the line she had seen all 3 of her children leave school and go on to university, 2 of them graduate, and she got to meet the love of my life who I will one day marry.
A week ago today we lost her. She wasn’t ready to go but she got unlucky. And she’s left a hole in our lives.
I struggle to remember mum before the MND, people tell me the memories are in there but they haven’t surfaced for me yet.
Even so when I reflect on the woman she was I’m filled with such pride. She was always in control. She couldn’t move her arms or legs for the last few years but she was still in control. She could ask to be left in bed all day and sleep through the pain and frustration if she wanted to, but every day she was able she sat at the kitchen table, or on the sofa or in the garden - and she lived.
She ran the house, she bossed us all around, she did the food shop, found recipes, gave advice, made jokes, played music, read, laughed, cuddled, cried.
Everyday she chose to love and compelled those around her to love as well. The world is a darker place without her.
I’m so proud of my Mum.
My mum is called Sarah, she was diagnosed with MND in 2012 while I was 16.
At the start I was completely terrified of losing my mum, she was the kindest person in the world and the care and compassion she possessed knew no bounds.
I was scared that her body would betray her and she would be locked in a prison of frustration and sadness.
I was upset that she would not be there to see me leave school, be at my wedding or hold her grandchildren.
But my Mum wouldn’t let such a horrific disease get the best of her. She fought every step of the way and 9 years down the line she had seen all 3 of her children leave school and go on to university, 2 of them graduate, and she got to meet the love of my life who I will one day marry.
A week ago today we lost her. She wasn’t ready to go but she got unlucky. And she’s left a hole in our lives.
I struggle to remember mum before the MND, people tell me the memories are in there but they haven’t surfaced for me yet.
Even so when I reflect on the woman she was I’m filled with such pride. She was always in control. She couldn’t move her arms or legs for the last few years but she was still in control. She could ask to be left in bed all day and sleep through the pain and frustration if she wanted to, but every day she was able she sat at the kitchen table, or on the sofa or in the garden - and she lived.
She ran the house, she bossed us all around, she did the food shop, found recipes, gave advice, made jokes, played music, read, laughed, cuddled, cried.
Everyday she chose to love and compelled those around her to love as well. The world is a darker place without her.
I’m so proud of my Mum.
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