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Coping with bereavement

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    Coping with bereavement

    I recently lost my dear beautiful wife Angie to MND on the 29/10/2021. Angie was first diagnosed back in April 2019 and for the remainder of the year she enjoyed life the way she knew best, by socialising whenever and wherever possible. At the beginning of 2020 I would become Angie's full time carer as the illness began to change. Angie and me would continue to socialise throughout 2020/2021 - Covid permitting and I would continue to care and love my dear wife until she passed away. After 39 wonderful years of marriage and 3no beautiful children, our time together in the physical sense was over. However, Angie remains firmly in my head and heart and always will. The pain I am feeling at this moment is unbearable and everyday life is so difficult without Angie. I would give anything to have those caring days back.

    Brian

    #2
    I feel your pain having lost many loved ones. The hardest job is for those of us who survive them. Time is the only thing that can help. She's at peace now RIP
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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      #3
      Thank you for those kind words Matthew55

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        #4
        bridoc2904 sincerest condolences such a loss. The deeper the love the deeper the grief. Take good care of yourself. xx
        Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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          #5
          Hi Brian, your post speaks from your heart.I totally relate to the way your wife chose to live her days from diagnosis as we choose to socialise as often as we can.My husband of 45 years is walking a similar journey as he watches my changes due to MND .

          I hope you are getting some support from family and friends and of course there is bereavement counselling if it’s available in your area.

          Its all so raw when you have been together for so many years.I am sure Angie got comfort from having you by her side throughout the MND journey.

          Thankyou for sharing your heart ache.

          Best wishes
          Mary

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            #6
            bridoc2904 . I am so very sorry for the loss of your beloved wife Angie. The pain must be unbearable.

            You had a beautiful relationship and I hope in time your happier memories will bring you comfort.

            Please accept my condolences xx

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              #7
              bridoc2904 A warm welcome to the forum. I am so sorry for the loss of your beloved Angie.

              Your deep love for her shines through in every word you wrote and now, only 4 weeks since her death, your grief is very raw. Your feeling of loss is so tangible especially because, as Angie's carer in the latter stage of her MND, you were together so much and in a very intensive way.

              There are other bereaved on the forum and I'm sure, in time, you'll be able to talk to a counsellor, if that's what you want.

              Take care xx
              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                #8
                bridoc2904 I am so sorry for your loss. It sounds as though you had a wonderful life together.

                Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.

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                  #9
                  I’m sorry for your loss Brian. I don’t know what else to say, but the advice about you seeking bereavement counselling when you feel ready is something that they agree about. Take care, Lynne x
                  ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                  I'm staying positive and taking each day as it comes.

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                    #10
                    So sorry for your loss Brian. It seems you has a lovely 39 years of marriage. I hope you can reflect on all your good memories and the strength you and your family had in looking after Angie.
                    Ive just celebrated our 40th anniversary. My husband was diagnosed with MND in 2016 he has been relatively stable but this year there is a definite deterioration.I know I will miss these caring days albeit very hard at times.
                    I wish you and your family all the best wishes in this very difficult time. X

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                      #11
                      Hi Brian

                      I'm so sorry to read of the loss of your beloved wife Angie. I'm caring for my husband and we try to make the most of every day as we know most likely time is short. It's a privilege to care for him though not a situation anyone would choose.

                      Best wishes
                      x
                      Husband died 14 months after MND diagnosis.

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                        #12
                        Can I thank you all for the warm sincere responses, they have given me a great deal of comfort today. x

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                          #13
                          Lost my Jan in September and like you I adored her. Leaves a massive gap. But I do feel better when we get a chance to talk to others ,just writing this helps! Hopefully time will be the healer ?

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