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Lost my beautiful sweetheart

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    Lost my beautiful sweetheart

    Lost my beautiful sweetheart a week ago πŸ’”. I'm so proud of of her so brave, so beautiful. I will love her always
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    #2
    ❀️

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      #3
      markce So sorry for the loss of your lovely lady.
      It's hard enough living with this evil condition. We forget how hard it can be for those we have to leave behind.
      Hi, I'm Eddie.
      Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
      Still walking and talking, and wondering what the future will bring.

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        #4
        Love and hugs πŸ’•πŸ˜˜πŸ€—πŸ’•
        when i can think of something profound i will update this.

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          #5
          So sorry to hear this. Sending condolences on the loss of your lovely wife. πŸ’•
          Diagnosed 3rd November 2021 Bulbar Onset

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            #6
            Oh Mark, I'm so sorry to hear this, heartfelt condolences to you. I know you must have some truly wonderful memories of your 30 years together which will bring you some comfort in the future.

            Thanks for posting that lovely photo of your wife xx
            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

            ​

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              #7
              Beautiful photo, sincere condolences
              Diagnosed October 2020 - See my blog at https://www.myneurodiary.com

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                #8
                So sorry Mark. Watching a loved one go through this disease is hideous but loosing them moves it onto a different level. My thoughts are with you and the family.

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                  #9
                  Very sorry for your loss Mark 😒
                  Foxes Never Quit πŸ’™

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                    #10
                    Sincere condolences....such a loss. Take care of yourself πŸ™
                    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                      #11
                      So sorry for your loss, thanks for sharing the lovely photo. Sending love, Heather xx
                      Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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                        #12
                        So sorry for your loss.

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                          #13
                          Sending condolences and big hugs to you. xxx

                          Carer for husband diagnosed with ALS April 2021. Hand onset. PEG fed, completely immobile, communicates with eye gaze.

                          Respiratory and blood gases still within normal range.

                          No speech but sense of humour still fully intact.

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                            #14
                            So sorry for your loss xx

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                              #15
                              Sincere condolences to you. That is a lovely photo of your wife. My thoughts are with you and your family xx

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