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My beautiful Elaine has goneā€¦.

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    My beautiful Elaine has goneā€¦.

    Hello Folks

    My beautiful partner Elaine has died after a truly courageous battle against this most cruel of diseases. Given 2 years maximum after diagnosis she lived for 5, defying all medical expectations and never once complainingā€¦.I will miss her terribly. šŸ’”šŸ’”

    Iā€™m planning Elaineā€™s funeral and would like to include a reading or poem about courage and bravery against all the odds. I wonder if anyone had any suggestions?

    Love
    Mike
    X

    #2
    So sorry for your loss Mike šŸ˜”
    Foxes Never Quit šŸ’™

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      #3

      Hearfelt condolences to you Mike.

      RIP Elaine.

      Love Ellie xx

      ā€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

      ā€‹

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        #4
        Sorry to hear your very sad news Mike. I can't imagine how hard it must be organising everything and trying to express all that Elaine was.

        Not sure I can recommend anything but sometimes I save poems to my phone, so I will have a look xx
        Diagnosis confirmed Jan 2022 (age 46) after several years ignored/ misdiagnosed.

        Symptoms began in left foot 2017. Now mainly left side, speech and some loss on right side too.

        Unable to walk unaided (powerchair user), poor speech, left hand behaves like a drunk toddler but generally positive and determined.

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          #5
          So sorry for your loss Mike

          Sending condolences x
          Diagnosed 3rd November 2021 Bulbar Onset

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            #6
            So sorry to hear this Mike. Sheā€™s at rest now from this awful illness. Sending love to you xx

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              #7
              So sorry for your loss

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                #8
                Thoughts are with you xxxxxx
                Carer for husband diagnosed with ALS April 2021. Hand onset. PEG fed, completely immobile, communicates with eye gaze.

                Respiratory and blood gases still within normal range.

                No speech but sense of humour still fully intact.

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                  #9
                  so so sorry for your loss xx

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                    #10
                    So very sorry for the loss of your wonderful Elaine. Thinking of you xx

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                      #11
                      Very sorry for you loss x

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