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    3 years today

    It's 3 years today since I lost Mick to this dreadful disease. We didn't even get a year after diagnosis. I miss him every single day. I still log on here. God Bless all of you that are still fighting. Hopefully one day there will be a cure for this terrible illness x

    #2
    shrew big hugs for you. I'm glad you still pop on the forum. xx
    Diagnosed May 2021 bulbar onset als.

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      #3
      Love and hugs shrew.

      ๐Ÿ˜˜๐Ÿค—
      when i can think of something profound i will update this.

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        #4
        That was so quick Shrew, sending love xx
        Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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          #5
          shrew Gosh S, 3 years since lovely Mick died ๐Ÿ˜Ÿ

          Love to you and the family. xxxx
          โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

          โ€‹

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            #6
            Thank you so much everyone for your kind words x

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              #7
              shrew sending my best wishes to you xx

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                #8
                shrew I too look at the posts on here frequently. I decided to look today and saw this.... I read, but don't normally reply to anything, but maybe should. Not sure why I can't let go... Three years is a long time, but gone in a puff of smoke! Sending my warmest wishes and hugs to you xx Wishing everyone on here all the best xx
                Never take tomorrow for granted!

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                  #9
                  shrew - sending hugs x
                  Diagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.

                  Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!

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                    #10
                    Thank you for posting shrew. It doesn't seem like 3 years since you lost your beloved Mick.

                    Love and hugs to you and your family xxx๐Ÿ˜˜๐Ÿค—

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                      #11
                      Thanks everyone. I got a beautiful boxed bouquet off my daughters, and 2 other bouquets, and a plant. I went out for tea with my youngest Daughter who lives near me and her partner. He wouldn't have wanted me to be sad x

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