It's 3 years today since I lost Mick to this dreadful disease. We didn't even get a year after diagnosis. I miss him every single day. I still log on here. God Bless all of you that are still fighting. Hopefully one day there will be a cure for this terrible illness x
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shrew big hugs for you. I'm glad you still pop on the forum. xxDiagnosed May 2021 bulbar onset als. -
Love and hugs shrew.
๐๐คwhen i can think of something profound i will update this.Comment
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That was so quick Shrew, sending love xxDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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โDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Thank you so much everyone for your kind words xComment
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shrew I too look at the posts on here frequently. I decided to look today and saw this.... I read, but don't normally reply to anything, but maybe should. Not sure why I can't let go... Three years is a long time, but gone in a puff of smoke! Sending my warmest wishes and hugs to you xx Wishing everyone on here all the best xxNever take tomorrow for granted!Comment
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shrew - sending hugs xDiagnosis confirmed Jan 2022 (age 46) after several years ignored/ misdiagnosed.
Symptoms began in left foot 2017. Now mainly left side, speech and some loss on right side too.
Unable to walk unaided (powerchair user), poor speech, left hand behaves like a drunk toddler but generally positive and determined.Comment
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Thank you for posting shrew. It doesn't seem like 3 years since you lost your beloved Mick.
Love and hugs to you and your family xxx๐๐คComment
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Thanks everyone. I got a beautiful boxed bouquet off my daughters, and 2 other bouquets, and a plant. I went out for tea with my youngest Daughter who lives near me and her partner. He wouldn't have wanted me to be sad xComment
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