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    3 years today

    It's 3 years today since I lost Mick to this dreadful disease. We didn't even get a year after diagnosis. I miss him every single day. I still log on here. God Bless all of you that are still fighting. Hopefully one day there will be a cure for this terrible illness x

    #2
    shrew big hugs for you. I'm glad you still pop on the forum. xx
    Diagnosed May 2021 bulbar onset als.

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      #3
      Love and hugs shrew.

      ๐Ÿ˜˜๐Ÿค—
      when i can think of something profound i will update this.

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        #4
        That was so quick Shrew, sending love xx
        Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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          #5
          shrew Gosh S, 3 years since lovely Mick died ๐Ÿ˜Ÿ

          Love to you and the family. xxxx
          โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

          โ€‹

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            #6
            Thank you so much everyone for your kind words x

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              #7
              shrew sending my best wishes to you xx

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                #8
                shrew I too look at the posts on here frequently. I decided to look today and saw this.... I read, but don't normally reply to anything, but maybe should. Not sure why I can't let go... Three years is a long time, but gone in a puff of smoke! Sending my warmest wishes and hugs to you xx Wishing everyone on here all the best xx
                Never take tomorrow for granted!

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                  #9
                  shrew - sending hugs x
                  Diagnosis confirmed Jan 2022 (age 46) after several years ignored/ misdiagnosed.

                  Symptoms began in left foot 2017. Now mainly left side, speech and some loss on right side too.

                  Unable to walk unaided (powerchair user), poor speech, left hand behaves like a drunk toddler but generally positive and determined.

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                    #10
                    Thank you for posting shrew. It doesn't seem like 3 years since you lost your beloved Mick.

                    Love and hugs to you and your family xxx๐Ÿ˜˜๐Ÿค—

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                      #11
                      Thanks everyone. I got a beautiful boxed bouquet off my daughters, and 2 other bouquets, and a plant. I went out for tea with my youngest Daughter who lives near me and her partner. He wouldn't have wanted me to be sad x

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