It's 3 years today since I lost Mick to this dreadful disease. We didn't even get a year after diagnosis. I miss him every single day. I still log on here. God Bless all of you that are still fighting. Hopefully one day there will be a cure for this terrible illness x
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shrew big hugs for you. I'm glad you still pop on the forum. xxDiagnosed May 2021 bulbar onset als. -
Love and hugs shrew.
๐๐คwhen i can think of something profound i will update this.Comment
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That was so quick Shrew, sending love xxDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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โDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Thank you so much everyone for your kind words xComment
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shrew I too look at the posts on here frequently. I decided to look today and saw this.... I read, but don't normally reply to anything, but maybe should. Not sure why I can't let go... Three years is a long time, but gone in a puff of smoke! Sending my warmest wishes and hugs to you xx Wishing everyone on here all the best xxNever take tomorrow for granted!Comment
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shrew - sending hugs xDiagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.
Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!Comment
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Thank you for posting shrew. It doesn't seem like 3 years since you lost your beloved Mick.
Love and hugs to you and your family xxx๐๐คComment
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Thanks everyone. I got a beautiful boxed bouquet off my daughters, and 2 other bouquets, and a plant. I went out for tea with my youngest Daughter who lives near me and her partner. He wouldn't have wanted me to be sad xComment
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