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My best friend

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    My best friend

    It is with great sadness that I announce that i have lost my amazing husband, partner and best friend of 31 years.

    He has been incredibly brave throughout his 18 month battle with this bastard MND.

    He passed away peacefully tonight surrounded by family and he knew that he was very much loved.

    He will leave a huge hole in my life and in my heart he was so brave and never complained. He had total control until the end which meant so much to him.

    Fly high Dean, my hero - I love you forever. You and me, me and you xxxxxxx


    Carer for husband diagnosed with ALS April 2021. Hand onset. PEG fed, completely immobile, communicates with eye gaze.

    Respiratory function - CO² Up

    No speech but sense of humour still fully intact.

    #2
    MMG I'm so so sorry that you've lost Dean. I am glad that your family were all there for you & Dean. I've been thinking of you lots.

    I hope you get support through this very sad time. Xxxx
    Diagnosed May 2021 bulbar onset als.

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      #3
      Oh MMGI am so sad to hear this but so grateful it was peaceful.

      I wish I could give you the biggest hug. Stay in touch it will be lovely to hear from you.

      Love to you and your family.
      😘 xxx

      when i can think of something profound i will update this.

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        #4
        MMG, I’m so very sorry, heart breaking for you all. Sending much love and a hug xx
        Carer for my husband who was diagnosed with ALS on 15.12.21.
        Trying to think of only today and tomorrow
        Alison ♥

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          #5
          MMG so sorry for the loss of your Dean. Sending strength and love to you all.

          Comment


            #6
            MMG

            Such sad news on the loss of your Dean. Sending love to you all xx
            Diagnosed 3rd November 2021 Bulbar Onset

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              #7
              I am so very very sorry to hear this, you and Dean have been so brave throughout xxxxx

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                #8
                MMG I'm so sorry that you've lost your amazing husband. I think you've both been so brave through this, you've supported him in his wishes no matter how difficult for you.
                I hope it's of some comfort that it was peaceful and he was surrounded by the love of his family. Sending strength and love to you all x

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                  #9
                  MMG So so sorry to hear of the loss of your beloved soulmate and wingman.

                  Heartfelt condolences to you and your family.

                  RIP Dean.

                  Love Ellie xx
                  ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                  Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                    #10
                    Very sorry for your loss.

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                      #11
                      MMG
                      Journey well Dean.
                      Love and strength to those he has left behind.
                      Hi, I'm Eddie.
                      Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
                      Still walking and talking, and wondering what the future will bring.

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                        #12
                        MMG

                        You’re so right bastard disease. So pleased he was in control to the end. Deepest condolences to you and jour family.


                        Laurence Hope’s words
                        For this is Wisdom; to love, to live,
                        To take what Fate, or the Gods, may give.
                        To ask no question, to make no prayer,
                        But to kiss the lips and caress the hair.
                        Speed passion’s ebb as you greet its flow.
                        To have, – to hold, – and, – in time, – let go!

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                          #13
                          So sorry for your loss 😔
                          Foxes Never Quit 💙

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                            #14
                            Thinking of you and your family, while you battle such loss and grief. 💔

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                              #15
                              MMG so so sorry to hear this. Thinking of you all at this awful time. RIP Dean. Xx

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