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    My husband known as Andrew from Chester Le street, sadly passed away last Tuesday 25 October. We had a very difficult journey to Zurich, but with the support of two of our sons, Andrew’s brother and my sister we made it. The day before Andrew died was lovely with lots of Andrew’s humour shining through. He maintained his dignity right to the end, controlled his passing the way he wanted to, with an amazing playlist and a huge amount of love in the room despite our sadness at loosing and amazing husband, dad, brother and brother-in- law. This disease is truly awful and was incredibly aggressive in Andrew’s case. In this modern age it is crazy that we had to travel overseas for Andrew to fulfil his wish to be in control of his death at the time he felt was right for him. I will miss him so so much but I am so proud of how he dealt with this illness and his decision to end his life, incredibly brave, no complaints, no feeling sorry for himself, always thinking of what it meant for me his wife, our boys and the rest of his close family and friends. An amazing man, he will always be with me.

    Jan Gillespie

    Oh Jan, I'm so sorry to hear of Andrew's death but good to know that he called the shots in the end, albeit having to undertake a very arduous journey to a foreign (enlightened) country to do so. Thank you for letting us know.

    Heartfelt condolences to you, your 3 sons and wider family.

    RIP Andrew

    Love Ellie xx
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user


      Oh Jan

      I'm so sorry but I'm so happy that Andrew got to have what he wanted. Such a shame that you all had to travel so far to carry out his wishes.

      Love to all of you.
      when i can think of something profound i will update this.


        Jan Gillespie heartfelt condolences on losing your wonderful husband. So glad he managed to be in control of the end, and well done all of you to make it to Switzerland to be with him despite difficulties . May he now rest in peace x
        Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!


          Sending you my thoughts and condolences 😔
          Foxes Never Quit 💙


            Thinking of you and your family ❤️🙏
            Relieved that Andrew was able to have his wishes met. RIP


              Oh Jan, I so sorry to hear of the loss of your beloved husband. Thank you for taking the time to let us know.

              I'm glad he was able to fulfill his wishes and be in control. You and your family should feel very proud of yourselves and Andrew for giving him the strength and support to do this.

              RIP Andrew,
              Love Debbie xx


                Jan Gillespie - very sorry to hear of Andrew passing. But glad he was able to keep control and dignity. Travelling with family at his side supporting him and enabling him to plan his remaining time must have been such a comfort to him.

                Sending you and your family love and strength to get through the future, holding his memories firmly in your hearts forever xx
                Diagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.

                Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!


                  Sending my condolences on the loss of your beloved husband. I am glad he was able to have control and dignity at the end with his family there.

                  RIP Andrew
                  Diagnosed 3rd November 2021 Bulbar Onset


                    I am also very sad to read of Andrew's passing. But I am glad that he had full control and dignity until the very end.

                    I agree it's so wrong that to be able to make that choice you have to travel abroad and the difficulties that involves.

                    I hope you can take some small comfort that his wishes were carried out. Take care and thanks for having the thought to let us know.
                    Diagnosed June 2022. Confirmed MND. Limb onset. Symptoms started November 2020.


                      Jan Gillespie sending condolences to you and your family. R I P Andrew xx


                        Jan Gillespie Sending you lots of love and hugs at this time. I hope that you get lots of comfort from knowing that the end was comfortable and thatAndrew maintained dignity and control.

                        I wish you all the best with your journey through bereavement - it is tough, but be so proud of his and indeed the whole families bravery to have supported him through it.

                        Carer for husband diagnosed with ALS April 2021. Hand onset. PEG fed, completely immobile, communicated with eye gaze

                        Sense of humour intact throughout.

                        Sadly passed away peacefully 2/9/22