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My husband Stephen

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    My husband Stephen

    Stephen died on Monday surrounded by his family. I think I was expecting it but didn't really want to accept this. I thought I would be prepared but no everything was left to the last minute.

    Peace at last and yet that morning he was doing his best to sing. At least this dreadful disease gets to die with him.

    Love to everyone. I'm sorry I haven't been around I just wanted to focus on other things.

    Xxxx
    when i can think of something profound i will update this.

    #2
    Oh Denise, I am so very sorry to hear this, sending much love and condolences to you and your family xxx
    Lost my lovely husband on 31.12.22, diagnosed with ALS on 15.12.21.
    Alison ♥

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      #3
      So very sorry to hear this Denise, an awful outcome at the end of a difficult road xxx

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        #4
        No need to apologise denise, you needed to focus on what you were dealing with but I hope you knew that we were all thinking of you and sending our love. Such a dreadful time but it's good to hear that Stephen was still trying to sing and he had his family around him. He is at peace now xxx

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          #5
          So sorry for your loss. Thoughts are with you all.

          Stephen you are at peace now. Hope you are enjoying a fag.

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            #6
            Denise I don't think anyone can prepare for a loved one passing. Please look at what you've been through and every crap turn you were out fighting Stephen's corner.

            You did Stephen's proud.
            Big hugs xxxx
            Diagnosed May 2021 bulbar onset als.

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              #7
              So sorry to hear this. My sincere condolences and sending big hugs to you. xx
              Diagnosed 3rd November 2021 Bulbar Onset

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                #8
                I am so sorry to hear this Denise. Sending you and your family condolences. Stephen is at peace now. I hope you have some good support. Sending love and hugs to you. xx
                Bulbar onset diagnosed Nov 21. No speech but limbs ok so far.

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                  #9
                  Sorry to read this, but thank you for sharing things and helping with things that come up on the forum.
                  2020: odd symptoms. Nov 2021: Hand atrophy.. Mar 2022: Second arm atrophy - Confirmed Apr 2022: MND.
                  Also Crohn's Disease from 2005ish. (Hi, I'm Dan in Cheshire)...

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                    #10
                    Denise, I am so sorry to hear of Stephen’s passing and I’m thinking of you and your family. I wish I could give you a real, big hug. I hope you have family and friends to help you with all the necessary details. ❤️‍🩹

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                      #11
                      Thanks everyone. It's so lovely to have you all there. It really means so much.
                      😘😘😘
                      when i can think of something profound i will update this.

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                        #12
                        Denise, so sorry to hear about the passing of your beloved husband.
                        Thanks for sharing this difficult part of your lives with us over the last few months, and we hope you are left with many happy memories.
                        Big hugs to you and the family.
                        Hi, I'm Eddie.
                        Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
                        Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
                        Still wondering what the future will bring.

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                          #13
                          I’m so sorry for your loss, there are no words I can say to help you feel better, so I’m sending you hugs xx
                          Hi, I’m Pauline. Keeping positive, working through a bucket list with the love of my life, my husband Gareth.

                          Diagnosed July 2022 Bulbar onset ALS. PEG fitted but not used yet. Speech poor, some swallowing issues, right arm weakness and loss of dexterity, left arm getting weaker. Starting to feel unsteady on feet but still mobile.

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                            #14
                            Gosh denise, I am so sorry to hear this.

                            Sending love and hugs to you, your children and their partners.

                            RIP Stephen.
                            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                              #15
                              denise I am so so sorry to read this. i didnt expect this yet at all. We are all here for you.

                              Denise u did everything possible to get Stephen the care and support he needed. I admire you so much.

                              Please take all the comfort and support from family and friends.

                              You are in my thoughts.
                              Lots of love x
                              Diagnosed June 2022. Confirmed MND. Limb onset. Symptoms started November 2020.

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