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Introductions to areas – having to move

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    Introductions to areas – having to move

    The current MNDA housing campaign misses a major issue - it is all very well to campaign for bigger grants to convert properties, but there are those of us living through MND who live in houses that are not suitable for conversion because of their shape or size - which is where I am.

    At present the help I have had is limited to being told that the house in which we live is not suitable for conversion should I ever need to be in a wheelchair, which is my likely destination.

    I am posting here because we are looking at moving from central London to somewhere in the south east of England and in particular would like contacts to talk to in these areas;
    • Portsmouth
    • Southampton
    • Lewis



    Thank you all in advance
    Warmly


    Andy

    ​Diagnosed 03/2015. One sided limb onset (arm) sporadic ALS/MND. MND hitting - now 50% left arm and 90% right arm, plus other bits including left shoulder

    "Things turn out the best for people who make the best of the way things turn out"

    #2
    moving

    Could you swap to a council property ,we nearly had one 25 years ago,Heres portsmouth.gov.uk, southampton.gov.uk,Lewes.gov.uk, they all contain advice on council and private housing.
    Last edited by Streetwise; 27 October 2019, 18:34. Reason: extra addresses

    Comment


      #3
      Hi there

      Thank you for the thought

      I think probably not as we would have some difficulty getting onto the housing register?

      Partly because we would be seen as intentionally homeless as we are moving out of central London and partly because as we already have our own place we will be seen as too rich to take local authority or housing association property.

      I mention housing associations because quite a lot of local authority housing was vested in housing associations at the point where local authority tenants were asked to vote as to whether they would stay in the local authority or not about fifteen years ago.

      Have tried this out locally in Lewisham, and was essentially told that if I got stuck in a private sector property e.g. in a wheelchair and could not get out or could not get the toilet, then they might consider rehousing but that might take three months or six months until a suitable property became available and we would simply have to take what was available wherever it was - mind you at that stage we would be so desperate that we would probably take anything
      Warmly


      Andy

      ​Diagnosed 03/2015. One sided limb onset (arm) sporadic ALS/MND. MND hitting - now 50% left arm and 90% right arm, plus other bits including left shoulder

      "Things turn out the best for people who make the best of the way things turn out"

      Comment


        #4
        Good afternoon,

        Will be raising a glass this evening to this house which is now under offer for sale and hoping to be sober enough to go down to Southampton on Friday to look at the place we think we want to buy and to meet the builder who built it to talk about widening doors et cetera to make it fit.

        So wish us luck!
        Warmly


        Andy

        ​Diagnosed 03/2015. One sided limb onset (arm) sporadic ALS/MND. MND hitting - now 50% left arm and 90% right arm, plus other bits including left shoulder

        "Things turn out the best for people who make the best of the way things turn out"

        Comment


          #5
          Oh Andy, that's great news (albeit you're forced to move because of the MND )

          The very best of luck for Friday and I'll have everything crossed there won't be any glitches along the way.

          Hope moving house works out as well for you as it did for me.

          Love Ellie.
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

          Comment


            #6
            Hi Andy, that is good news. I hope everything works out well for you. Good luck for Friday.
            Best wishes Sheila.

            Comment


              #7
              Hi Andy,

              Great news and good luck with the move. I spent the 80’s living near Southampton and enjoyed many happy days on the Solent.

              Best wishes,
              Barry
              I’m going to do this even if it kills me!

              Comment


                #8
                Good luck about your prospective new home Andy. I hope that all goes to plan. Lynne
                ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
                I'm staying positive and taking each day as it comes.

                Comment


                  #9
                  Good Luck with it all Andy

                  Comment


                    #10
                    Good morning

                    Thank you all

                    I'm cheered up because the "Dutch auction" that our agent ran has resulted in rather more money for the place we live in at the moment that I was expecting.

                    I've made contact with the MND coordinator at Southampton Gen Hospital and she has come back on the bounce so that's great but I have had less success with the local MND branch - does anybody here know any of them or are any of you one of them? I could do with some local knowledge about contractors et cetera.
                    Warmly


                    Andy

                    ​Diagnosed 03/2015. One sided limb onset (arm) sporadic ALS/MND. MND hitting - now 50% left arm and 90% right arm, plus other bits including left shoulder

                    "Things turn out the best for people who make the best of the way things turn out"

                    Comment


                      #11
                      Hello Andy,

                      Congratulations on the successful auction of your house. I hope everything went well with your trip to Southampton on Friday.

                      Very best wishes to you and your family,
                      Kayleigh

                      Comment


                        #12
                        Good afternoon

                        Please keep fingers toes arms and legs crossed for us if indeed you can.

                        We are moving towards exchange of contract in terms of selling our house with a very short chain I'm glad to say and have now confirmed an offer on a place in Southampton which has plenty of space for accommodating me in a wheelchair starting off with 80 cm wide doors as standard and plenty of height for a lift to get me from the proposed upstairs bedroom to the downstairs wet room.

                        It's on the wrong side of the common really since we wanted to be on the other side to be close to the hospital and the central station but the upside is its near a swimming pool and the University so when some loose some.
                        Warmly


                        Andy

                        ​Diagnosed 03/2015. One sided limb onset (arm) sporadic ALS/MND. MND hitting - now 50% left arm and 90% right arm, plus other bits including left shoulder

                        "Things turn out the best for people who make the best of the way things turn out"

                        Comment


                          #13
                          Hope all goes well Andy,

                          It's a big move but sounds quite good.

                          Love Terry
                          TB once said that "The forum is still the best source for friendship and information."

                          It will only remain so if new people post and keep us updated on things that work or don't work and tips.

                          Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

                          Comment


                            #14
                            Woohoo Andy !

                            Everything crossed for hassle free completion.

                            Love Ellie.
                            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                            Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

                            Comment


                              #15
                              Wishing you a smooth passage to your new home Andy. Buying a new home is often a compromise, right street, wrong house and vice versus.

                              Barry
                              I’m going to do this even if it kills me!

                              Comment

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