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    Barry’s challenge

    Hi all,

    Over the years I have organised or been involved with fundraising for MNDA. We rely on friends and family to sponsor us so this time I wanted to challenge myself and inspire my supporters to part with their money.

    I have registered for an abseil at an adventure park near Leicester on 17th April. I will be hoisted up a tower and then abseil down. If all goes well I can have a second try. My family thinks I’m crazy but each time I discover things I can no longer do, I move onto something else.

    You can follow me on https://trk.justgiving.com/f/a/Gr2dn...NvLnVrWAQAAAAD
    I’m going to do this even if it kills me!

    #2
    Way to go, Barry - just don't do a BoJo on it

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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      #3
      Well done Barry - very brave!

      I've put a few pennies in your tin.

      Doug

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        #4
        Thank you Doug I had noticed on justgiving. I hope to attach a video after the event but only if I don’t mess up.

        Best wishes,
        Barry
        I’m going to do this even if it kills me!

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          #5
          Hi friends,

          Although Mission 5000 doesn’t officially start until tomorrow, Sunday 13th September I started my challenge early and completed it yesterday. Covid cancelled my wheelchair abseil so I decided to cycle 500 miles on my exercise bike. There was no way I could complete 500 miles in the timeframe of the MNDA challenge, hence me getting off to a flyer. Cycling indoors is very boring but I have enjoyed watching videos on my iPad whilst clocking up the miles and found a benefit of reduced spasticity.

          My target was to raise £500 and I am well passed this amount. I thank all my sponsors for their support

          Best wishes,
          Barry
          I’m going to do this even if it kills me!

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            #6
            Well done, Barry!

            Doug

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              #7
              Is spinning still a thing? If so then Barry is King. 👍

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                #8
                Well done you xxxx

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                  #9
                  Fantastic, Barry - congrats on the amount raised and well done for staying upright on the bike 😁

                  Love Ellie.
                  ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                  Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                    #10
                    Well done and thank you Barry, 😊

                    Love Debbie x

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                      #11
                      What an achievement!! Thank you Barry

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                        #12
                        Wow, amazing Barry. Your a star, Lynne
                        ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
                        I'm staying positive and taking each day as it comes.

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                          #13
                          Amazing Barry – well done!

                          I've been wondering whether I ought to get an exercise bike - I've lost my interest in cycling after having been on the back of my parents tandem before I could walk and wonder if this would rekindle my interest
                          Warmly


                          Andy

                          ​Diagnosed 03/2015. One sided limb onset (arm) sporadic ALS/MND. MND hitting - now 50% left arm and 90% right arm, plus other bits including left shoulder

                          "Things turn out the best for people who make the best of the way things turn out"

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                            #14
                            Hi Andy,

                            I recently cancelled my gym membership and whilst I felt the exercises my trainer set me were helping my spasticity I don’t feel comfortable returning to the gym and it is a hassle booking appointments. I console myself with the fact that 2 years of gym membership saved will justify the cost of the bike. Ironically the money I have raised in sponsorship equates to the same amount. You may find it helps you get some exercise if you buy a bike but remember to build up gradually and stop when you feel tired.

                            Best wishes,
                            Barry

                            I’m going to do this even if it kills me!

                            Comment


                              #15
                              Hi Barry,

                              Thank you for your message but I do not really want to buy another bike – I still have three including a Brompton having sold the bike I used to use for riding over mountains and our tandem – the latter going back to our post-wedding honeymoon when we rode from Vienna to Salzburg and back through the mountains with lots of resulting anecdotes.

                              On exercise I saw this somewhere and wonder perhaps if it needs wider promulgation?

                              Mind the wrapping of the URL

                              https://www.als.net/news/excercise-a...hny26K8eFjKQbc
                              Warmly


                              Andy

                              ​Diagnosed 03/2015. One sided limb onset (arm) sporadic ALS/MND. MND hitting - now 50% left arm and 90% right arm, plus other bits including left shoulder

                              "Things turn out the best for people who make the best of the way things turn out"

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