Vote for Rob Burrows - Motor Neurone Disease Association Forum

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LindaB

Forum Member

Join Date: Jun 2021

Posts: 2710
#1

Vote for Rob Burrows

18 August 2021, 17:58

https://www.instagram.com/p/CSt1cwdF9pI/?utm_medium=copy_link

Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.
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matthew55

Forum Member

Join Date: May 2020

Posts: 5794
#2

18 August 2021, 18:22

Very sorry but I don't do Instagram ☹️😘😁😁xx

Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx
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Ellie

Forum Member

Join Date: Oct 2012

Posts: 10687
#3

18 August 2021, 19:27

I don't think you can vote on Instagram but you can click here to vote on the NTA website.

Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Deb

Forum Member

Join Date: May 2018

Posts: 1935
#4

18 August 2021, 19:30

I've voted via a link on Facebook and shared it amongst all my fb friends. Ellies link is possibly easier x
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LindaB

Forum Member

Join Date: Jun 2021

Posts: 2710
#5

18 August 2021, 20:53

Thanks Ellie yes I voted via NTA💋

Good to remind people to vote✊

Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.
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matthew55

Forum Member

Join Date: May 2020

Posts: 5794
#6

19 August 2021, 03:19

Sorry to be thick but who is Rob and what are we voting him into? 🤔🤗😁😘xx

Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx
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LindaB

Forum Member

Join Date: Jun 2021

Posts: 2710
#7

19 August 2021, 09:11

Rob Burrows...ex Rugby Player
Voting for a BBC film of his MND story

matthew55

Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.
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matthew55

Forum Member

Join Date: May 2020

Posts: 5794
#8

19 August 2021, 13:57

I really should remember that. Why the vote? It's a no brainer. 👍😁😀😚xx

Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx
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LindaB

Forum Member

Join Date: Jun 2021

Posts: 2710
#9

19 August 2021, 14:00

It's some kind of TV entertainment award ceremony. Just thought it helps spread the word..👍

Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.
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