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Urge your MP to ensure that people with MND can live in safe and accessible homes

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    #1

    Urge your MP to ensure that people with MND can live in safe and accessible homes

    See home page for details

    https://ecampaigns.mndassociation.org/page/97913/action/1?ea.tracking.id=hub
    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​
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    #2
    Done
    • Likes 1

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      #3
      If I get the chance I will ask about the act to Adapt campaign and who is making sure its happening
      when i can think of something profound i will update this.
      • Likes 1

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        #4
        Originally posted by denise View Post
        If I get the chance I will ask about the act to Adapt campaign and who is making sure its happening
        If you click the link can e-mail your MP...if you haven't already😉
        Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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          #5
          Done
          Mary
          • Likes 1

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            #6
            Done.
            Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder and hand function. Trying to be positive 😺.
            • Likes 1

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              #7
              I'm going to speak to him never mind email. My plan is to irritate everyone. My new year's resolution.
              when i can think of something profound i will update this.
              • Likes 3

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                #8
                Done
                Diagnosed 3rd November 2021 Bulbar Onset
                • Likes 1

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                  #9
                  Signed and shared on Facebook. Still waiting for the door to be sorted
                  Hashtag
                  Still house bound
                  5 minutes from the sea and Thomas still has not seen it.

                  Been here 6 months on Monday

                  Wheelchair Accessible my big toe


                  Deep breath, rant over


                  Donna

                  Carer and partner, toThomas diagnosed MND July 2020, Fail Arm Type
                  Donna

                  Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.
                  • Likes 3

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                    #10
                    DeeH politicians need to be held accountable👍🏻 xx
                    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​
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                      #11
                      Good luck with that
                      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx
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                        #12
                        I've emailed and spoken about my issues on a zoomy. Now have his ear Luke Pollard MP, local councillor and a caseworker. Just need to type up my woes. Think it might end up as a book but doubt if it will be a best seller. 🤔
                        when i can think of something profound i will update this.
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                          #13
                          Originally posted by denise View Post
                          I've emailed and spoken about my issues on a zoomy. Now have his ear Luke Pollard MP, local councillor and a caseworker. Just need to type up my woes. Think it might end up as a book but doubt if it will be a best seller. 🤔
                          denise

                          I would read it.

                          The 16 years with both parents with dementia
                          I could write War and Peace length about that

                          Only 18 months on MND warpath, need to get me a case worker.




                          Wife/Carer to Thomas, diagnosed MND in July 2020
                          Donna

                          Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.
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                            #14
                            Thank you for the link LindaB . I've signed and shared xx😘🤗
                            • Likes 1

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                              #15
                              Go get 'em Donna. 😘
                              when i can think of something profound i will update this.
                              • Likes 2

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