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Enjoying the break and I found my laughter uncontrollable when the comedian performed last night. Special offer on a full body Swedish massage so I am going for pampering this afternoon.
I am liking the butler,Kayleigh but I am not sure he would be as good as my husband at massaging my feet and putting on my "foot ups " before I get out of bed.
Lynne, I hope you are ok after your fall..its so horrible when your legs give way. Your new bed sounds great and hope you're ok after your operation.
Have a great , pampering weekend Barry. I have been inspired to google Warner weekend breaks.
Take care everyone and have a good weekend.
Love Debbie x
Hi Deb. Despite the new mattress I still get serious pain in my back. I get up earlier than my husband when I've had all that I can take of back pain. It does ease when I get up. The divan that we slept on in the other house did not do this. I loved the hospital bed because both ends rose and it was set in just the right position for my comfort and it was easier breathing. I don't know what to do to get the same comfort. My husband took off the memory foam topper because it didn't help and made the bed top high. Hopefully the foam wedge that my OT is trying to get will help. With a very deep mattress it won't bend but hopefully we can put something under the foot of it and encourage it to bend a bit. I'm seriously fed up with intense bsvk pain every night (after a few hours lying flat). I'm still sore from my op. But no regrets. Lynne
ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.
It is good that you found the bed in hospital so comfortable - but a shame that you could not bring it home with you! -as it sounds like a hospital bed would be perfect, especially with your back problems.
As some people with MND are supplied with hospital beds free of charge, I presume that at some point we might be supplied with one - but I don't know what symptoms we would need to have before that happens.
So sorry about your back..As Kayleigh says,it seems so unfair that you have found a comfortable bed in hospital and it isn't provided for you at home. There is enough to cope with, without such pain.Hopefully your OT will have some solutions that will make you more comfortable.
What a difference a massage makes. I recommend it for anyone with spasticity and it may be possible to get a grant from MNDA to pay for some treatment. Ask your OT or regional care advisor.
I also recommend Warner’s hotels for a break since they have good facilities for disabilities and all your food and entertainment is on site. If you don’t mind dodging other wheelchairs or walkers it is the perfect place to wind down and recharge the batteries and that goes for your carer also.
Thanks for the helpful recommendation Barry. Great to hear that you are relaxed and refreshed.
Also, good to hear that Warners is a perfect place for us to re-charge our batteries - I do know what you mean, but your comment did make me smile, because it reminded me of a certain pink bunny ........
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