Announcement

Collapse
No announcement yet.

Broken record

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Kayleigh
    replied
    Thanks for the helpful recommendation Barry. Great to hear that you are relaxed and refreshed.

    Also, good to hear that Warners is a perfect place for us to re-charge our batteries - I do know what you mean, but your comment did make me smile, because it reminded me of a certain pink bunny ........

    http://https://m.youtube.com/watch?v=OkgtHr0pWhU

    Kayleigh x

    Leave a comment:


  • Barry52
    replied
    What a difference a massage makes. I recommend it for anyone with spasticity and it may be possible to get a grant from MNDA to pay for some treatment. Ask your OT or regional care advisor.

    I also recommend Warner’s hotels for a break since they have good facilities for disabilities and all your food and entertainment is on site. If you don’t mind dodging other wheelchairs or walkers it is the perfect place to wind down and recharge the batteries and that goes for your carer also.

    Best wishes from a fully charged Barry

    Leave a comment:


  • Deb
    replied
    Hi Lynne,

    So sorry about your back..As Kayleigh says,it seems so unfair that you have found a comfortable bed in hospital and it isn't provided for you at home. There is enough to cope with, without such pain.Hopefully your OT will have some solutions that will make you more comfortable.

    Love Debbie x

    Leave a comment:


  • Kayleigh
    replied
    Hi Lynne,

    It is good that you found the bed in hospital so comfortable - but a shame that you could not bring it home with you! -as it sounds like a hospital bed would be perfect, especially with your back problems.

    As some people with MND are supplied with hospital beds free of charge, I presume that at some point we might be supplied with one - but I don't know what symptoms we would need to have before that happens.

    Best wishes
    Kayleigh
    Last edited by Kayleigh; 20 January 2019, 00:27.

    Leave a comment:


  • Kayleigh
    replied
    Hi Barry,

    Glad you are enjoying your weekend away.

    I hope you didn't get jaw ache from all that laughing - the comedian sounds like the perfect entertainment to cheer you up after your fall!

    I hope you enjoyed the massage today.

    (I expect that some of us will be googling Warner breaks now - they sound great!)

    Take care,
    Kayleigh x
    Last edited by Kayleigh; 19 January 2019, 18:33.

    Leave a comment:


  • Lynne K
    replied
    Hi Deb. Despite the new mattress I still get serious pain in my back. I get up earlier than my husband when I've had all that I can take of back pain. It does ease when I get up. The divan that we slept on in the other house did not do this. I loved the hospital bed because both ends rose and it was set in just the right position for my comfort and it was easier breathing. I don't know what to do to get the same comfort. My husband took off the memory foam topper because it didn't help and made the bed top high. Hopefully the foam wedge that my OT is trying to get will help. With a very deep mattress it won't bend but hopefully we can put something under the foot of it and encourage it to bend a bit. I'm seriously fed up with intense bsvk pain every night (after a few hours lying flat). I'm still sore from my op. But no regrets. Lynne

    Leave a comment:


  • Deb
    replied
    I am liking the butler,Kayleigh but I am not sure he would be as good as my husband at massaging my feet and putting on my "foot ups " before I get out of bed.

    Lynne, I hope you are ok after your fall..its so horrible when your legs give way. Your new bed sounds great and hope you're ok after your operation.

    Have a great , pampering weekend Barry. I have been inspired to google Warner weekend breaks.

    Take care everyone and have a good weekend.
    Love Debbie x

    Leave a comment:


  • Lynne K
    replied
    Glad that you had a good laugh last night Barry. I hope that you enjoy your pampering this afternoon. Lynne

    Leave a comment:


  • Newbie17
    replied
    Funnily enough Kayleigh, my hubby often refers to himself as my butler.
    He’s pretty amazing but I wouldn’t mind a younger model! Shhhh.... x

    Barry, have a great weekend, take it easy and please post a review x

    Leave a comment:


  • Barry52
    replied
    Enjoying the break and I found my laughter uncontrollable when the comedian performed last night. Special offer on a full body Swedish massage so I am going for pampering this afternoon.

    Happy weekend all.
    Barry

    Leave a comment:


  • Lynne K
    replied
    Hi Kayleigh. We exchanged our thin Ikea sprung mattress for their supa dupa 2 layer pocket sprung best one. It sits on slats and is very deep so won't bend for a gadget underneath it. My OT is trying to get me a simple foam bed wedge that goes under pillows. Lynne

    Leave a comment:


  • shrew
    replied
    sorry about your fall Barry. Hope you are feeling better soon and enjoy your break!

    Leave a comment:


  • Kayleigh
    replied
    Hi Lynne,

    It's good that you have already been provided with a bed guard.

    We could both do with one of those fancy adjustable beds, like this:-
    https://www.completecareshop.co.uk/b...yABEgKgu_D_BwE

    Or failing that, a 'mattress genie' (I never knew these existed before today!):-
    https://www.healthandcare.co.uk/bed-...yABEgKJoPD_BwE

    Plus, we definitely need choose one of these each (every lady of the house should have at least one to assist her! LOL):-
    https://www.google.com/search?q=butl...BmZufKpdPtf9kM

    Best wishes,
    Kayleigh x
    Last edited by Kayleigh; 18 January 2019, 23:07.

    Leave a comment:


  • Lynne K
    replied
    Thanks Kayleigh. I have a bed guard given by local services. I pull on that to help me get out of bed but it's still hard. Lynne x

    Leave a comment:


  • Kayleigh
    replied
    That sounds painful Lynne. I have got weak muscles around my knees and so I have to be very careful to get up from a chair or bed slowly, as they can sometimes 'give way' like yours did. I always use my rollator or walking frame for support whilst standing up.

    Grab rails for the bed are also useful for giving support whilst getting in and out of bed - maybe something that OTs or similar should provide - but as with many things, in reality it might be a bit of a postcode lottery about whether they are provided free of charge, and how long it takes to get them.

    I hope you are OK now and that you have an enjoyable weekend.

    Kayleigh x

    Leave a comment:

Working...
X