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Here is some information about the South London Branch, including contact details for Evelyn Hayward who should be able to give you further information about that Branch:-
(A few of us left you messages on the Edaravone thread, but understandably you might not have had time to read them yet!!).
I expect you have got a lot of things to sort out, but hopefully you'll find the people at your local Mnda branch will help you to get settled back in England - although probably not so easy to get used to the cold weather again!! Lol
Just a thought - Yvonne Maxwell is the local MND Adviser for South London, and so you might wish to contact her for advice e.g about what support and help should be available for you and how to access it.
Just in case you need it, I have provided a link to further information about the local Advisers, including their contact details. If you scroll down to the end of that webpage, Yvonne's contact details are near the end of the list (i.e. 4th one up from the end of the list).
Hi Kayleigh, yes I’ve contacted Yvonne with no reply and tried to call but her phone is off. She could be on holiday and I wouldn’t blame her it’s freezing here xxx
There should be an email address for her as well - but perhaps you are right about her being on holiday?! Also, I might be wrong, but it could be the case that the MND Advisers don't work at weekends or on Bank Holidays.
The other option is to phone the MND Connect helpline because someone there might be able to answer any questions you have - also someone on the helpline can ask Yvonne to contact you. (They might also know if she is away on holiday). Perhaps give the helpline a call on Tuesday? (as I don't think it's open on Bank holidays or weekends).
I hope you've got your thermals on Jerry! - its typical weather for a May bank holiday weekend!! Lol )
As I said elsewhere I am a member of the South London branch committee, so please feel free to contact me given what you need.
Please note, I have been trying to contact Yvonne myself, but I understand she is having some time out, so she may not come back to until next week
Warmly
Andy
Warmly
Andy
Diagnosed 03/2015. One sided limb onset (arm) sporadic PMA/MND - now 90% left arm and 90% right arm, plus other bits including both shoulders and also some breathing issues – Campaign contact Winchester and Southampton branch, and trustee of the Association
"Things turn out the best for people who make the best of the way things turn out"
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