On my own now

[Pixielee32]

How hard is this to do alone?
Apologies that I had to Edit because I don’t know how to delete! I didn’t mean to vent so much! Thank you for taking time out to reply ❤️

[Ellie]

Pixielee32 I'm so sorry you were subjected to all that nastiness - I can only imagine how it brought you down...

I’d rather be on my own than live with all that stress.

Yes, that's the crux of it.

I don't have any personal experience of living alone, sorry, but I do know that my lovely carers have a very positive impact on my life.

Wishing you much happiness. xx

[TinyLady]

So sorry to hear how you are struggling. I don't live alone, but my partner has really struggled with my diagnosis. He is rarely affectionate any more and I often feel like a burden.

He explained to me he just isn't coping, it hurts him and he hates to even look at me. But he isn't spiteful or unkind. But even so it does really hurt me and I do feel very lonely and unloved/ unlovable at times.

It sounds like you have supportive children and a good network around you. So lean on them when you need to. I think love and support that is genuine and reliable is the best, no matter who provides it. And one thing I can promise is the people on this forum are incredibly supportive xx

[Bowler]

So sorry to read about the tough time you have been having. Much respect for having taken what must be a difficult decision.

I don’t know if you are already hooked up with an Association Visitor if not it might be something to consider. The link below will give you some info. Select local support.

https://www.mndassociation.org/support-and-information/

[Hope]

I am so sorry to hear what you have been through.

I live alone. My MND support team are great at making sure I am coping ok. Fortunately I am still mobile, although my legs are weakening, so I do not need carers yet. I don’t know if you have a good support team but I would advise you to accept any help you are offered.

As you have found out, there is a lot of help and support here too. xx

[Bowler]

How hard is this to do alone?
Apologies that I had to Edit because I don’t know how to delete! I didn’t mean to vent so much! Thank you for taking time out to reply ❤️

Absolutely no need to apologise. You are one brave lady.

[Zante]

I agree with Bowler there is no need to apologise at all. you have the support of everyone here and hopefully a good support package in the community. I am single with no children, but I don't live alone, I live with my elderly mum ( she wont be happy with that term!) and am also worried about the practicalities with further progression. We recently had a visit from the council OT about wet room etc and whilst here I also discussed care needs for future and was advised a parent wouldn't be expected to be a carer and that care would be provided(?) so there are options available. xx

[Claireflo]

I'm sorry I've missed this thread so not sure of the full context. My dad lives alone (my useless brother lives next door but other than a brief chat he hasn't provided any support up to now).

I've seen reference to you having supportive children and a good support network so lean on them. They may not understand how they can support best or what support you might need as things change but if you can explain what would help you most I'm sure they'll do their best to support you alongside any professional medical support.