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    #16
    Originally posted by Terry View Post
    Hi Dina,

    I am mischief and always try to cause trouble in a delightful way.

    It would be great if both of you could get about and sit outside or in the coffee shop.

    Anything to break up the day and promote interest.

    Love Terry
    Hi Dina and Douglas,

    Good suggestion of TC's to meet up in a coffee shop, if you can - and you might even see him in there, entertaining the cafe girls again with his sweet-talk and his excellent taste in music!

    But if you do see TC in the coffee shop, you'd better keep a close eye on all your portions of cream - in case he tries to get his paws on them (as, unsurprisingly, TC does like his coffee to be extra creamy!) .....
    ..... although, of course, there's nothing wrong with wanting to be the forum's cat that's got the cream !

    I hope you both enjoy your next secret rendezvous (shhhh....we won't tell the nurses, if you don't! LOL).

    Love Kayleigh x
    Last edited by Kayleigh; 27 September 2019, 19:36.

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      #17
      Originally posted by Gillette View Post
      I was part-way through getting my wheelchair sorted when I ended up in here. I certainly limit the time I spend in my chair for that reason, as well as because of the discomfort.
      Is there any reason that the wheelchair services can't come into the hospital to sort out your comfort in the wheelchair, Dina;

      Love Terry
      TB once said that "The forum is still the best source for friendship and information."

      It will only remain so if new people post and keep us updated on things that work or don't work and tips.

      Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

      Comment


        #18
        Originally posted by Terry View Post
        Is there any reason that the wheelchair services can't come into the hospital to sort out your comfort in the wheelchair, Dina;

        Love Terry
        Unfortunately they need me to go to the clinic they run as they have to take some measurements and do some other stuff to adapt the chair for me because of the way my body now tilts.

        I shall add it to the very long list of things that I need to do when I am finally discharged. With any luck that might be in around three weeks...
        Dina

        Trying to keep positive, but not always managing.

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          #19
          Originally posted by Gillette View Post

          ... when I am finally discharged. With any luck that might be in around three weeks...
          I'm sorry to hear that Dina - just hope that time passes quickly and it'll mean things will be set up for you to leave hospital.

          Love Ellie.
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
          Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

          Comment


            #20
            Originally posted by Gillette View Post
            Situation report:

            At lunchtime today I cheekily snuck into the men's bay of the ward I am in at Wythenshawe Hospital. I was on a secret mission i.e. when staff asked me why I was there I feigned innocence.

            Ah! Success!

            I trundled over to the bed in the the far left corner where I had spotted my prey... and then I pounced! (OK, not exactly pounced as I can't get out of my wheelchair.)

            "Hello," I said, "I'm Dina, from the MND Forum". I am hugely gratified to be able to report that my victim's face broke into a smile and I was given an enthusiastic "thumbs up".

            So, who was my mystery man?

            Why, it was Douglas, of course, otherwise known as Dis1960 here on the forum! I had known for a while that he was a patient on the ward but resisted the temptation to ask staff how he was faring - patient confidentiality, and all that.

            He seemed in fairly good spirits and was happy for me to tell members on here that I had seen him. I was only with him briefly but I am pleased that I met him and introduced myself. I hope to break into the bay again soon.

            Report ends.
            hi Dina, i was there yesterday as a day patient.

            we are taking over the world

            Comment


              #21
              Steve is in hospital again. He came home for a week and ended up back in with his infection coming back and respiratory failure.. we thought it was the end but but miraculously he has made a good recovery and only on his nippy at nighttime..

              Steve is in an acute ward that 2 bays of 4 beds. 1 each for men and women and 4 side rooms. At one time there were 3 men and 2 women with MND in the ward.

              At the moment you would call him a bed blocker!! He has been waiting for a care package for nearly 2 weeks now. I have taken his wheelchair in and we go for jaunts around the 3 different cafes and weather permitting a little walk outside. I have downloaded some programmes onto the iPad and I am taking his eye gaze in today as he is so bored.

              They have tried to move him to another ward while we wait but his needs are too high and no one will take him. The physio and his MND team are opposing the move too. I can understand they would like him to move as he is taking up an expensive bed.

              Hope you get home soon too Dina. It is so frustrating waiting for things to be put in place.

              Sue

              Comment


                #22
                Sorry to hear that Steve is back in hospital, Sue.

                Hope his care package is quickly sorted and he's back home with you soon.

                Love Ellie.
                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
                Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

                Comment


                  #23
                  Thank you, Sue. Yes it is frustrating waiting for the wheels to grind. Every week the timescale for me getting home seems to extend by a week. Hmph. I'm sorry that Steve has been so unwell and been hospitalised but good to know he has recovered so well.

                  You should have invaded the ward, Ironwill. We could have had a welcome party! There are at least four MND patients in here at the moment.

                  While I was touring the ward this evening I accosted a lady, whom I had noticed had been at Douglas's (Dis1960's) bedside. I just asked "Are you Chrissie?" and her reply was "Dina!". It was lovely to meet her. I've invited her to my bedside any time she wants to grumble or even if she doesn't want to grumble!
                  Dina

                  Trying to keep positive, but not always managing.

                  Comment


                    #24
                    Hi Sue,

                    Hope Steve is more comfortable now. It's not hard to see why there are not so many beds in hospitals, a lot of it is because there is not so much care in the community.

                    Good to hear that you are getting him out and about.

                    Love Terry
                    TB once said that "The forum is still the best source for friendship and information."

                    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

                    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

                    Comment


                      #25
                      Hi Dina,

                      Shame that you didn't manage to see ironwill, it would have been so nice. Hope chrissie pops in and sees you.

                      Good to hear that you are still touring.

                      Wheelchair services do go to people's homes, so I don't see any reason that they can't see you at the hospital. Email Mnda Connect and see if they can help and arrange it.

                      I will send you a tape measure if that's the only problem.

                      Love Terry
                      TB once said that "The forum is still the best source for friendship and information."

                      It will only remain so if new people post and keep us updated on things that work or don't work and tips.

                      Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

                      Comment


                        #26
                        [QUOTE=Sueb;92715]Steve is in hospital again.

                        They have tried to move him to another ward while we wait but his needs are too high and no one will take him. The physio and his MND team are opposing the move too. I can understand they would like him to move as he is taking up an expensive bed.

                        Hi Sue,

                        I am sorry to hear that Steve has been taken back to hospital but happy to hear that he has rallied round. I’m pleased to hear that the MND team are supporting him so my guess is he is at QMC. I am going there tomorrow for an appointment with the fracture team where I hope they will give me the all clear following my fall so I will try to find Steve and have a catch up.

                        Best wishes,
                        Barry x
                        I’m going to do this even if it kills me!

                        Comment


                          #27
                          Hi Terry,

                          Usually Wheelchair Services do come to the house. They did tell me why they needed me to attend the clinic but I can’t remember the reason as so much has happened since then.
                          Dina

                          Trying to keep positive, but not always managing.

                          Comment


                            #28
                            Hi Barry

                            he is in D56 it’s in south block

                            Sue

                            Comment


                              #29
                              Hope you enjoyed your eggsalad

                              Comment


                                #30
                                Originally posted by Dis1960 View Post
                                Hope you enjoyed your eggsalad
                                Ha ha ha ha ha! Well, I certainly enjoyed complaining to the chap from Sodexo.
                                Dina

                                Trying to keep positive, but not always managing.

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