Liquid paracetamol / sore throat

[SarahWP]

Thanks all. We’re seeing the consultant tomorrow, to discuss the operation so I’ll ask about the rig. Thanks for the tip.

:-)

Sarah xx

[Ellie]

Can't they just do the normal RIG small opp?

I guess that's the Surgeon's call - it all depends on being 100% sure in getting safe anatomical access to the stomach.

[mickmac]

Hi Sarah

Sorry to hear that the procedure was canceled. That must have been a bit of a shock for you. I think Terry has a good point about a rig instead. I have a rig and the actual procedure was quick and straight forward. Does anyone know if there are any advantages of one over the other?

Mick.

[Terry]

Hi Chimp;

Can't they just do the normal RIG small opp?

Love TC

[Ellie]

Hi Sarah,

First of all, there's no fat shaming here!!!

I know belly fat can be an issue in placing a feeding tube but, in general, the extra weight can be a positive thing in MND.

The endoscope has a light on its tip which is used to illuminate the abdominal wall. If the light from the scope isn't visible from the outside of the tummy, the surgeon can't see a safe tract and so has no guide for tube placement.

I am no surgeon, but typically the more 'surgical' approach involves making a larger incision than usual, so the stomach can be identified and the surgeon can see a safe tract to the skin for the tube. Then the tube procedure proceeds as normal.

You should ask the doctor to explain what will happen as it may be different to what I've described!! Also ask if it'll be done under a general anaesthetic - it probably will be.

Best wishes.

Love Ellie.

[Sheila]

Hi Sarah,
Wow, you have been through it, these last few days, I am sorry that happened to you. I am sorry I can't help you with the surgically fitted peg. I am sure someone on here can. Are you at home now?
Thanks for keeping us updated
Love
Sheila xx

[SarahWP]

Hi everyone, thanks for your encouraging words. Im so touched by how caring this Forum us. As it happens , when I went in yesterday they ended up not having a bed for me but promised me one today. So returned today and actually had the endoscopy procedure but they couldn’t fit the peg as my stomach wasn’t accessible- so I’m going to have to have it done surgically instead. After all that! The endoscopy bit was horrible again today but the care I received was outstanding.

To be honest, it's most likely my own fault they couldn’t do it as I’m overweight. Oh the shame!!

Has anyone had a peg fitted surgically? What’s it like? Any info gratefully received.

Thank you
Sarah xx

[mickmac]

Hi Sarah

I hope that the Peg goes well. With that in place you might be able to take liquid medications through the tube. If that's not possible I have found using a straw to suck up liquids is easier than using a syringe. I use a big straw used for smoothies for thick liquid. This depends on weather your suction is strong enough and if you are getting a feeding tube fitted it might not be but it is worth considering.

Mick.

[Gillette]

Hi Sarah,

All the best for tomorrow. I had a PEG fitted four weeks ago and was pleasantly surprised at how easy it was - and I am the world's worst coward when it comes to having medical things done. In fact, years ago a consultant carried out an operation under a general anaesthetic because he said I wouldn't be able to have the lesser treatment because I was shaking so much with fear when all he was doing was examining me, So, when I say it was a doddle, it really was!

[Deb]

All the best for tomorrow, Sarah. Hope all goes well and you're back home soon.

Theres no need to say sorry on here. I dont think theres such a thing as making a fuss with MND as every new symptoms is scary, whether it's related to our MND or not. It's understandable that you're feeling anxious and overwhelmed and it's especially hard if you're not getting the right pain relief.

Love Debbie x

[Sheila]

Don't worry Sarah, we share all sorts of worries on here, and lots of rants. There is always kind words and advice. We all get our very bad days, but what can we do. Just try and take one day at a time.

Love Sheila

[Ellie]

Sarah, sounds like you're wearing your Big Girl Pants today

Hope everything goes swimmingly tommorrow - don't be a martyr to any pain, any where; ask for pain relief when it's needed. It's tough enough dealing with MND without pain, with pain it can open up a can of worms...

Love Ellie.

[Terry]

Hi Sarah;

If I knew you better, I would say man up but I don't so I'll say "Person up". No, sore throats are bad for us as we can be oversensitive and coughing and straining can become a bad circle. Not easy to brake.

Keep us updated.

Love Terry

[SarahWP]

Thanks all. I feel I’ve made a bit of a fuss over nothing, as it’s just a sore throat - so sorry! I think I was just a bit alarmed by how it came on. I also hadn’t been sleeping well for a few days and was overtired so I think things got on top of me a bit, but I’ve given myself a stern talking to and pulled myself together now! :-)

Thank you for your lovely messages, you’re all so kind. I’ll let you know how it goes.

Have a great day everyone.
Sarah xx

[Kayleigh]

Hi Sarah,

I hope your sore throat clears up soon and I hope everything goes well on Tuesday.

Love,
Kayleigh x