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Celebrate the GOOD THINGS

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    Nice to see your positive news Dina

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      Monday’s good thing was that a black cloud lifted because of the loving support of a very close friend.

      Don’t forget, this thread is for anyone to share any good thing, no matter how large or how small.
      Dina

      Trying to keep positive, but not always managing.

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        Tuesday’s good thing was being given a huge hug by my favourite staff member at the hospital M&S Food branch when she happened to see me elsewhere in the hospital this afternoon. Plus two of the baristas in Costa greeted me like an old friend. They gave me a lovely warm glow, which wasn’t all due to the coffee!
        Dina

        Trying to keep positive, but not always managing.

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          I love the good news thread!

          My good thing for this month is that my son and his lovely wife had the steps in their garden removed and a ramp built. ( I have not been able to get in their house for more than two years)

          It was meant to be a surprise but I smelt a rat when they borrowed one of my wheelchairs for the builder to try. ( yes I should have been a detective, ) They even lit sparklers on the side of the ramp when I first went in so I felt like a jungle celebrity.

          Its kept a smile on my face.
          Hoping others have some good things to smile at,
          Love Debbie x

          Comment


            That's great to hear about Debbie and thank you for kindly sharing your good news with us.

            It's amazing how liberating a ramp can be for us, as it's often impossible to visit family and friends in their homes without one.

            I hope you enjoy lots of regular visits to your family and it's great that the ramp was organised well before any festive family celebrations start.

            Love and best wishes to you and your family,
            Kayleigh x
            Last edited by Kayleigh; 6 November 2019, 22:47.

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              That is definitely a Good Thing, Debbie.

              How special are they to do that and sparklers for its inaugural use too!! Mind you, you're a special lady.

              Lots of visits now to make full use of the ramp

              Oh, I keep meaning to ask, how is your leg now?

              Love Ellie.
              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
              Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

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                Hi Debbie

                What a wonderful thing for them to do. No wonder it’s kept a smile on your face! And you should definitely celebrate it.
                Dina

                Trying to keep positive, but not always managing.

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                  Aw thanks Kayleigh, Ellie and Dina, It's kept me smiling all week. I am going to make lots of use of it so I have told them they might regret it if they get fed up of me !

                  Thanks for asking about my leg Ellie. It doesn't hurt or ache anymore which is fantastic for my sleep ! More good news ! Together with my OT and physio we have found safer ways to transfer without weight bearing. I guess my stubbornness made an accident likely so I would urge caution to everyone about falls.

                  Thank you and here's hoping for more good things on here soon,
                  Love Debbie x

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                    Hi Deb;

                    Pleased to hear your leg is repairing and you're finding better ways of being moved around.

                    Love Terry
                    TB once said that "The forum is still the best source for friendship and information."

                    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

                    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

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                      Today’s good thing: I can still eat crisps! Had a bit of an emergency yesterday when I choked on a crisp, but I’m ok today and back to eating crisps. Everyone else thinks I shouldn’t eat them but I WANT CRISPS (*stamps feet in a temper)
                      Dina

                      Trying to keep positive, but not always managing.

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                        Good to hear that Dina, says another crispaholic

                        I find the thicker, crinkle crisps easier to scoff, I mean eat and salt & vinegar are my faves - the more vinegary, the better.

                        The bad thing though is someone has to feed me and no one does it fast enough

                        Enjoy them!

                        Love Ellie.
                        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
                        Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

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                          These are my favourite and they fit over my tongue where I let them soften before swallowing. They last much longer with this method.
                          DCD23AAE-62D0-4462-972E-4EB3185D6243.jpg

                          Love,
                          Barry
                          I’m going to do this even if it kills me!

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                            Hi all,

                            Barry, they are too big and not being a slice of potato, they seem to brake up and cause problems for me.

                            I have ridged crisps but it is better to not have them to big or lots of small pieces.

                            Please note that we don't recommend that Mnd people eat crisps because they are very challenging and can get stuck or bits inhaled. Just be very careful.

                            Love Terry
                            TB once said that "The forum is still the best source for friendship and information."

                            It will only remain so if new people post and keep us updated on things that work or don't work and tips.

                            Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

                            Comment


                              Such good news about the crisps Dina,

                              All this crisp chat has made me need a celebratory pack. Its definitely an evening to stay cosy , warm and eat crisps! ( cheesy wotsits are the best !)

                              Thanks for the warning Terry,
                              Love Debbie x

                              Comment


                                MR BARRY !!! Are they in front of you right now ??? It's before your dinner

                                You're all teasing me now... I am in respite with nobody to feed me crisps

                                Love Ellie.
                                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
                                Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

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