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Celebrate the GOOD THINGS

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  • Deb
    replied
    Absolutely delighted for you Dina, If anyone deserves good news it is you !

    Well done for starting this thread because I am sure we'll all have a little celebration of your news,

    Love Debbie x

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  • Doug Carpenter
    replied
    Fantastic news!

    It's made my day too.

    Doug x

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  • Ellie
    replied
    Oh Dina, I could weep for joy

    There weren't any 'you-specific' issues raised so far, so hopefully there won't be any last minute glitches.

    Will they give you any meds you're due (through feeding tube)?

    If the food pump comes up as an issue, Nutricia Homeward are excellent (at least, here they are) and willingly come to train carers, if necessary.

    If there is a bit of a delay in getting the right carers with the right training, don't panic, it'll be worth an extra few days in there and go home to a proper care set up.

    The main thing is that the CHC is FINALLY approved - and I am almost as happy as you are

    Onward and upwards.

    Love Ellie.

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  • Terry
    replied
    I don't believe it, Dina;

    Pleased pleased pleased, for you.

    Hugs Terry

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  • Gillette
    replied
    Amazing news

    IT'S BEEN APPROVED!

    I CAN GO HOME!
    I'll probably be going early next week, as long as the carers all get signed off for their me-specific training.

    Can you tell I'm pleased?

    Leave a comment:


  • Gillette
    replied
    Originally posted by Doug Carpenter View Post
    That's terrific news Dina!

    I am so relieved. One step at a time and all that.

    Fingers crossed!

    Doug
    Thank you, Doug. Don't worry, i'm not counting my chickens!

    I have a theory that the reason I'm still here is that the doctors and staff all love me so much that they can't to see me go! But I may have got that wrong. They reminded me yesterday that my hospital number includes '666', the sign of the Beast! Ha ha ha.

    Leave a comment:


  • Doug Carpenter
    replied
    That's terrific news Dina!

    I am so relieved. One step at a time and all that.

    Fingers crossed!

    Doug

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  • Gillette
    replied
    Thank you, Chrissie.

    Even though funding still hasn't been approved the first group of carers is coming in for training today, which shows remarkable trust on the part of the care company .

    I hope you and Douglas are settling in withyour new routine.

    Make sure you take very good care of yourself.

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  • chrissie57
    replied
    I hope their intervention does help, Dina. It is truly awful how you have been treated.
    Chrissie xx

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  • Gillette
    replied
    Thanks, Ellie. If or when I hear anything, I shall be shouting it from the rooftops!

    Terry, I don't care if they are because I feel very supported by them.

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  • Terry
    replied
    It can't do any harm, Dina;

    But I reckon they are doing it for their benefit as well as yours.

    Love Terry

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  • Ellie
    replied
    Hopefully their intervention will make a difference for you Dina.

    I've everything crossed for you.

    Big hug.

    Love Ellie.

    Leave a comment:


  • Gillette
    replied
    Today's good news (I' e trying to get online for hours to post it) is that the doctors on the ward are angry about the way I have been treated by the CHC. Although there is almost nothing they can do to speed up the process, they are submitting an incident report telling the CHC about the seriousness of the psychological and physical deterioration I have suffered since the Fast-Track application was submitted on 16 September.

    Although this is unlikely to do much for me, it may help other MND sufferers in the future.

    Perhaps there is light at the end of the tunnel and It could be Christmas, rather than Easter!

    Leave a comment:


  • Gillette
    replied
    Originally posted by Doug Carpenter View Post
    Soaked to the skin!

    Oh dear! That's not good. You must be careful Dina. Pleasures can have unforeseen consequences.

    Doug
    I've only just seen this, Doug, but if you find me some pleasures I will happily suffer the consequences. Ha ha ha.

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  • Doug Carpenter
    replied
    Soaked to the skin!

    Oh dear! That's not good. You must be careful Dina. Pleasures can have unforeseen consequences.

    Doug

    Leave a comment:

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