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Celebrate the GOOD THINGS

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    #16
    Thanks, Ellie. If or when I hear anything, I shall be shouting it from the rooftops!

    Terry, I don't care if they are because I feel very supported by them.
    Dina

    Trying to keep positive, but not always managing.

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      #17
      I hope their intervention does help, Dina. It is truly awful how you have been treated.
      Chrissie xx

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        #18
        Thank you, Chrissie.

        Even though funding still hasn't been approved the first group of carers is coming in for training today, which shows remarkable trust on the part of the care company .

        I hope you and Douglas are settling in withyour new routine.

        Make sure you take very good care of yourself.
        Dina

        Trying to keep positive, but not always managing.

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          #19
          That's terrific news Dina!

          I am so relieved. One step at a time and all that.

          Fingers crossed!

          Doug

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            #20
            Originally posted by Doug Carpenter View Post
            That's terrific news Dina!

            I am so relieved. One step at a time and all that.

            Fingers crossed!

            Doug
            Thank you, Doug. Don't worry, i'm not counting my chickens!

            I have a theory that the reason I'm still here is that the doctors and staff all love me so much that they can't to see me go! But I may have got that wrong. They reminded me yesterday that my hospital number includes '666', the sign of the Beast! Ha ha ha.
            Dina

            Trying to keep positive, but not always managing.

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              #21
              Amazing news

              IT'S BEEN APPROVED!

              I CAN GO HOME!
              I'll probably be going early next week, as long as the carers all get signed off for their me-specific training.

              Can you tell I'm pleased?
              Dina

              Trying to keep positive, but not always managing.

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                #22
                I don't believe it, Dina;

                Pleased pleased pleased, for you.

                Hugs Terry
                TB once said that "The forum is still the best source for friendship and information."

                It will only remain so if new people post and keep us updated on things that work or don't work and tips.

                Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

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                  #23
                  Oh Dina, I could weep for joy

                  There weren't any 'you-specific' issues raised so far, so hopefully there won't be any last minute glitches.

                  Will they give you any meds you're due (through feeding tube)?

                  If the food pump comes up as an issue, Nutricia Homeward are excellent (at least, here they are) and willingly come to train carers, if necessary.

                  If there is a bit of a delay in getting the right carers with the right training, don't panic, it'll be worth an extra few days in there and go home to a proper care set up.

                  The main thing is that the CHC is FINALLY approved - and I am almost as happy as you are

                  Onward and upwards.

                  Love Ellie.
                  ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                  Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

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                    #24
                    Fantastic news!

                    It's made my day too.

                    Doug x

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                      #25
                      Absolutely delighted for you Dina, If anyone deserves good news it is you !

                      Well done for starting this thread because I am sure we'll all have a little celebration of your news,

                      Love Debbie x

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                        #26
                        Fantastic news Dina and long overdue.

                        Once you are home you can live life how you dictate. I expect you won’t have as much time to write all the stories that keep us entertained or even those that anger us on your behalf.

                        Love,
                        Barry x
                        I’m going to do this even if it kills me!

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                          #27
                          Originally posted by Gillette View Post

                          I have a theory that the reason I'm still here is that the doctors and staff all love me so much that they can't to see me go! But I may have got that wrong. They reminded me yesterday that my hospital number includes '666', the sign of the Beast! Ha ha ha.
                          Hi Dina,

                          I think that was the Doctors just being cheeky and 'Number 46' with their joke about the number 666. All of them have told me they really think you are as cute as 'Number 42'!

                          I'm glad the doctors have been so supportive - and after your very good news today, perhaps their intervention helped and the CHC decision makers did follow 'Number 9', in the end!

                          If you are not familiar with Bingo calls, please click on the link below:-
                          http://https://blog.meccabingo.com/bingo-calls-complete-list/

                          I am so happy about your good news, that I could 'Number 35' - and was so pleased and excited when I read about it, I nearly spilled my 'Number 3'! LOL

                          Hopefully you will be home very soon - back to your home comforts and where you can enjoy plenty of quality time, including 'Number 41', with your family and friends.

                          .. and if you hear a 'Number 4', it might be me Trick or Treating?!! You can join me, if you like? I might have to ask TC if I can borrow his sweet-talking talking-machine though - as with my slurred speech, we'd be more likely to end up with lots of Teats, rather than Treats! LOL

                          Sending you lots of love and 'three score and ten' congratulatory hugs!

                          Kayleigh x
                          Last edited by Kayleigh; 16 October 2019, 17:34.

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                            #28
                            Great news Dina, so pleased for you.
                            Love Sheila x

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                              #29
                              Dina,

                              That is freaking awesome news, wohoo, yippee, absolutely fantastic )
                              You are my something good today

                              Comment


                                #30
                                Hello, everyone,

                                Thank you for your lovely messages and for the support I have received from you over these difficult weeks.
                                Dina

                                Trying to keep positive, but not always managing.

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