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Celebrate the GOOD THINGS

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    I’m so happy that everyone who was able to get out enjoyed their day. Let’s hope that we can now enjoy some freedom after a year of isolation. Looking forward to my booster jab next Sunday.
    I’m going to do this even if it kills me!

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      My daughter sent me this beautiful video, don't know if anyone else has seen it?
      https://m.youtube.com/watch?v=6Js0QG...UxiHxhJ13McXv0
      Love, Heather x
      Diagnosed July 2020, ALS bulbar onset.

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        Originally posted by Heather R View Post
        My daughter sent me this beautiful video, don't know if anyone else has seen it?
        https://m.youtube.com/watch?v=6Js0QG...UxiHxhJ13McXv0
        Love, Heather x
        Thank you for sharing Heather.

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          Thank you Heather,

          Beautiful film ! Looks a little chilly but it must be an amazing experience. X

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            Been doing some physio's exercises

            Today managed to coax a tiny bit of movement out of my right foot.

            Doug

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              Well done Doug. It's nice to see improvement.
              love and hugs Denise xxx

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                Good to hear that, Doug - any chance the carer can help keeping the joints moving? xx
                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                  Great news Doug and I hope you can continue the therapy.

                  My good news story from today about celebrating was a video meeting with the Lincolnshire and Cambridgeshire groups where we shared life stories without a mention of MND. 1 hour and 30 minutes passed by quickly with a lot of laughter and everyone felt better afterwards. I don’t have much speech but they are patient and understanding so I don’t feel isolated plus there is always the text option. Laughter is a wonderful medicine.
                  I’m going to do this even if it kills me!

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