The bar was open but no alcohol ๐ then the little ones were barred for tipping their juice all over the floor ๐๐
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Janette x -
Great video Heather. Thanks for sharing x
Wonderful that you got to share face to face time with friends Ellie. Yes, about time x
Sounds tasty Positive Vibes and well done for fitting in a cooking sessions into your busy schedule x
Doug, exercise sounds good. I wish ๐ x
and Barry, glad that you had a laugh with the groups mentioned ๐ x
My good news is that itโs Steveโs birthday today (71) and he baked himself a chocolate birthday cake and put candles on it. An choir of one (me) sang happy birthday and he blew his candles out.
My daughter is coming tomorrow with a card and a gift. She couldnโt come today. Iโm looking forward to seeing her, Lynne xxALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
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Thanks Lynne.
Happy Birthday Steve xx
Have a lovely day tommorow with your daughter tomorrow xxโDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
โComment
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I knew you were a spring ๐ Janette! xxโDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
โComment
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Thanks Ellie. I passed that on xOriginally posted by Ellie View Post
ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
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Happy birthday to Steve for yesterday. Save a piece of that cake for meIโm going to do this even if it kills me!Comment
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After the 'wardrobe wars' and trying to work out a compromise, my brother & sister-in-law came to the rescue with 2, I say, 2 temporary ones (with metal trays, rods and cover rather than wooden). And they put them up! In the sweltering heat! And helped us fill them!
Mum is all happy with looking forward to opening up the clothes in boxes, bags and suitcases....Carer for Dad - MND (ALS) 22/4/21 and Mum Alzheimers 26/5/21.
Girding my loins and grinding my battle axe for them both... https://forum.mndassociation.org/cor...ilies/wink.pngComment
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Thanks Barry, passed on just now, Lynne xOriginally posted by Barry52 View Post
ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
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Thatโs good ๐, Lynne xOriginally posted by Positive vibes View PostAfter the 'wardrobe wars' and trying to work out a compromise, my brother & sister-in-law came to the rescue with 2, I say, 2 temporary ones (with metal trays, rods and cover rather than wooden). And they put them up! In the sweltering heat! And helped us fill them!
Mum is all happy with looking forward to opening up the clothes in boxes, bags and suitcases....ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
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'Thanks Barry, passed on just now, Lynne x'
Reading out of context can be preturbing Lynne KBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐ค๐๐ค๐xxComment
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ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
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It's just that on here the phrase passing can mean dying! ๐xxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐ค๐๐ค๐xxComment
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I thought that but kept my gob shut ๐คฃwhen i can think of something profound i will update this.Comment
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That's a first. ๐๐ ๐Originally posted by denise View PostโDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
โComment
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Fanks Ellie. ๐when i can think of something profound i will update this.Comment
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