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    Originally posted by matthew55 View Post
    It's just that on here the phrase passing can mean dying! 😁xx
    No I ‘passed on’ to Steve Barry’s happy birthday message to him as he’s not on the forums nor will he ever be, Lynne x
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

    I'm staying positive and taking each day as it comes.

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      Have loved reading the good things for you all, great stuff. I have just had a lovely weekend visiting (thanks to my son driving), my 42 year old daughter who has just given birth for first time. e082892f-46b2-45c3-8f33-4f2745dbd889.JPG
      Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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        Originally posted by Heather R View Post
        Have loved reading the good things for you all, great stuff. I have just had a lovely weekend visiting (thanks to my son driving), my 42 year old daughter who has just given birth for first time. e082892f-46b2-45c3-8f33-4f2745dbd889.JPG
        That’s a lovely photo Heather. You must be a very proud grandma.
        I’m going to do this even if it kills me!

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          What a little darling. Bless 😚
          when i can think of something profound i will update this.

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            Originally posted by Heather R View Post
            Have loved reading the good things for you all, great stuff. I have just had a lovely weekend visiting (thanks to my son driving), my 42 year old daughter who has just given birth for first time. e082892f-46b2-45c3-8f33-4f2745dbd889.JPG
            Congratulations nanna or grandma (whichever you have chosen) and of course your daughter. Lovely baby photo, Lynne x
            ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

            I'm staying positive and taking each day as it comes.

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              Heather R Oh how wonderful Heather, congratulations! Your daughter must be over the moon with joy.

              Thank you so much for posting the photo.

              Love Ellie.
              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                Huge congratulations to you and your family Heather. You must be bursting with pride !

                Absolutely adorable baby... Gorgeous! Thank you for sharing with us.

                Love Debbie x

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                  Cuteness overload....
                  Carer for Dad - MND (ALS) 22/4/21 and Mum Alzheimers 26/5/21.

                  Girding my loins and grinding my battle axe for them both... https://forum.mndassociation.org/cor...ilies/wink.png

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                    This morning, for the first time this year, i had breakfast sitting in my wheelchair in the garden.

                    Doug
                    Diagnosed April 2017

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                      Originally posted by Doug Carpenter View Post
                      This morning, for the first time this year, i had breakfast sitting in my wheelchair in the garden.

                      Doug
                      Absolutely brilliant Doug. So pleased you got out 😎

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                        That sounds great thing to do, I love my garden. So glad you’re well enough again to enjoy that. X
                        Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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                          Thanks Bowler. It was one of those now or never moments.

                          Doug
                          Diagnosed April 2017

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                            Doug Carpenter thats a lovely cheerful post. Enjoy the 🌞
                            Diagnosed May 2021 bulbar onset als.

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                              So lovely to hear you're enjoying the sunshine and warmth Doug Carpenter. Xx😘🤗

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                                Doug Carpenter Considering how you were 10 weeks ago, it’s testament to your strength of character that you ate breakfast in your garden today - go you 👍👍 🤗😘
                                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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