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Celebrate the GOOD THINGS

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    GaryM Great news - one less thing for you both to worry over.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.


      Originally posted by Shaun View Post
      Hi Gary,
      hope you don’t mind me asking, I’m 2 months in since applying, did you have a phone interview or straight forward claim approved,
      ( I’m not expecting full award as I’m still mobile)
      Don't mind you asking at all, Shaun. Nobody contacted me at all. My consultant did send a DS1500, but I don't think this speeded up the claim. I wasn't sure what level I'd get as I can still walk. Someone told me that with a confirmed MND diagnosis you automatically get the full amount because of the rapid progression, but I don't know if that is really the case. I also raised the length of time it was taking, with my MP. Not sure if that had any effect either.
      Each day is made easier with a bit of humour.


        Originally posted by SueM View Post

        Hi Gary, I’ve got the forms to fill in, wasn’t sure when the right time would be to apply. I too am thinking that I will be lucky to get my pension so at least I will hopefully get something for all the years of NI.
        love Sue x
        Hi Sue. I claimed the day after the MND consultant had confirmed my diagnosis. I was originally told it was MND in July but then I was referred by my original consultant to a specialist MND consultant. As the claim form asks for the name of your consultant I was reluctant to give the name of the original one in case any communication got lost and I didn't know the name of the one I'd been referred to until I saw him in September. At the time I filled in the form I had no use of my left arm, badly affected speech and my right arm was beginning to get weaker. In the three months since, my right arm has become a lot weaker and I now need my wife's help to wash, dress and eat. Hope this helps.
        Each day is made easier with a bit of humour.