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Celebrate the GOOD THINGS

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  • GaryM
    replied
    Originally posted by SueM View Post

    Hi Gary, I’ve got the forms to fill in, wasn’t sure when the right time would be to apply. I too am thinking that I will be lucky to get my pension so at least I will hopefully get something for all the years of NI.
    love Sue x
    Hi Sue. I claimed the day after the MND consultant had confirmed my diagnosis. I was originally told it was MND in July but then I was referred by my original consultant to a specialist MND consultant. As the claim form asks for the name of your consultant I was reluctant to give the name of the original one in case any communication got lost and I didn't know the name of the one I'd been referred to until I saw him in September. At the time I filled in the form I had no use of my left arm, badly affected speech and my right arm was beginning to get weaker. In the three months since, my right arm has become a lot weaker and I now need my wife's help to wash, dress and eat. Hope this helps.

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  • GaryM
    replied
    Originally posted by Shaun View Post
    Hi Gary,
    hope you don’t mind me asking, I’m 2 months in since applying, did you have a phone interview or straight forward claim approved,
    ( I’m not expecting full award as I’m still mobile)
    shaun
    Don't mind you asking at all, Shaun. Nobody contacted me at all. My consultant did send a DS1500, but I don't think this speeded up the claim. I wasn't sure what level I'd get as I can still walk. Someone told me that with a confirmed MND diagnosis you automatically get the full amount because of the rapid progression, but I don't know if that is really the case. I also raised the length of time it was taking, with my MP. Not sure if that had any effect either.

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  • Ellie
    replied
    GaryM Great news - one less thing for you both to worry over.

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  • matthew55
    replied
    Off topic but my MND will kill me before I loose mobility. 😊

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  • Shaun
    replied
    Originally posted by GaryM View Post
    I got my PIP claim back today, after waiting almost three months. Awarded the full amount, which was nice. At least my wife doesn't have to phone them up again to tell them I've got worse. I think of it as an advance payment of the state pension that I probably won't see, after paying NI for forty years.
    Hi Gary,
    hope you don’t mind me asking, I’m 2 months in since applying, did you have a phone interview or straight forward claim approved,
    ( I’m not expecting full award as I’m still mobile)
    shaun

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  • matthew55
    replied
    It's worth checking for old work pensions as they can be paid out

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  • SueM
    replied
    Originally posted by GaryM View Post
    I got my PIP claim back today, after waiting almost three months. Awarded the full amount, which was nice. At least my wife doesn't have to phone them up again to tell them I've got worse. I think of it as an advance payment of the state pension that I probably won't see, after paying NI for forty years.
    Hi Gary, I’ve got the forms to fill in, wasn’t sure when the right time would be to apply. I too am thinking that I will be lucky to get my pension so at least I will hopefully get something for all the years of NI.
    love Sue x

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  • matthew55
    replied
    Welcome to the club 👍😉😂

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  • GaryM
    replied
    I got my PIP claim back today, after waiting almost three months. Awarded the full amount, which was nice. At least my wife doesn't have to phone them up again to tell them I've got worse. I think of it as an advance payment of the state pension that I probably won't see, after paying NI for forty years.

    Leave a comment:


  • denise
    replied
    My son and his partner are visiting. We've had a lovely time enjoying meals and chatting. It's given Stephen an incentive to eat, I've been worried that he's not been eating enough. I shall miss them when they leave for the UK.

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  • Tess
    replied
    That's lovely Barry!

    But is there not an exception in place for those who are terminally ill? I read an article 2 weeks ago as a terminally ill cancer patient questioned the restrictions with such limited time left.
    So if I'm being honest we've decided that my partner's parents can still pop in once a week provided they're well.

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  • Barry52
    replied
    I celebrated today.

    Following yesterday’s announcement about the tier two restrictions in Nottinghamshire, both my daughters were in contact to ask if they could see me before the deadline on Wednesday.

    Josie came over for lunch and Michelle came for dinner. I suspect they think it may be a while before we can meet up again. Busy day for me doing a fry up for lunch and a casserole for dinner but it was lovely to see them.

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  • denise
    replied
    I kicked off my trainers. Then i noticed something about 2 inches long and hairy that seemed to come out of my shoes. Panic! What to do? Run or try and catch it with the brush and dustpan. Image my relief when I realised it was my hair tie. 😊

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  • petermessi
    replied
    Thanks for your appreciation Deb.congratulations for your son. I pray for you that your dreams comes true. Live your life very happily and enjoy your life

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  • GaryM
    replied
    Here's some good news for you Jeanette Pearce . You are now in the privileged position of being able to eat as many cakes, puddings and sweets as you like without putting any weight on. One thing I regret though is that I hadn't heard of voice banking until it started affecting my speech and even then I was still hoping that my doubts about the diagnosis were unfounded, so didn't do anything about it until recently. I would advise anyone with a diagnosis to look into voice and message banking, it doesn't cost anything until you need the voice.

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