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MND has taken my lovely husband

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    MND has taken my lovely husband

    Sadly my darling Tony died in hospital yesterday of sepsis and pneumonia, brought on by F...... MND. He was very brave and able to say goodbye to his loved ones before slipping into a peaceful sleep. Our daughter Leanne had our first grand child, a beautiful boy, by emergency caesarian an hour later. Mum and baby doing well. What a day

    Devonmaid, I am so sorry that MND stole your beloved husband, Tony, yesterday on what should have been such a wonderful, special day for you all with the birth of your first grandchild. I hope you and Leanne will be able to find some comfort in her beautiful baby boy.

    Trying to keep positive, but not always managing.


      Good morning Devonmaid. What a challenging day for you all. I'm very sorry for Tony's passing and that he didn't get to see his new grandson, thanks, as you say to f...... MND. I hope that Leanne recovers well from the cesarean and you all find a way to deal with the mixed feelings that the day must have resulted in. Love and best wishes, Lynne x
      ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

      I'm staying positive and taking each day as it comes.


        Please accept my condolences Devonmaid. In time I hope you can move forward and I wish you lots of joy with your new grandson.

        Best wishes,
        I’m going to do this even if it kills me!


          I am so sorry to hear your news and also happy for you on the arrival of your grandson who will be a great help

          Judy xxxx


            Good morning, Devonmaid

            I can only echo the thoughts of those above - a day full of tragedy and joy.

            My condolences for your loss and my congratulations on the arrival


            ​Diagnosed 03/2015. One sided limb onset (arm) sporadic PMA/MND - now 90% left arm and 90% right arm, plus other bits including both shoulders and also some breathing issues – Campaign contact Winchester and Southampton branch, and trustee of the Association

            "Things turn out the best for people who make the best of the way things turn out"


              So Sorry that you lost Tony yesterday, Devonmaid;

              And you saying that your grandson was born on the same day made me cry, dam emotional liability.

              Hugs, Terry
              TB once said that "The forum is still the best source for friendship and information."

              It will only remain so if new people post and keep us updated on things that work or don't work and tips.

              Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.


                Dear Devonmaid,

                I'm very sorry to hear your lovely husband has passed away. My sincere condolences to you and your family.

                Its wonderful news that your new Grandson has arrived, safe and well. A precious new life for you and your family to love and cherish. I'm so sad that Tony didn't get to meet him.

                Although they never met, your baby Grandson will grow up, having his life enriched, with all his family's memories of what a wonderful and brave man his Grandad was.

                Rest in Peace Tony. You will never be forgotten. You will live on in the hearts of your loved ones and in all the precious memories they treasure of you.

                Love to you and all your family Devonmaid, and many congratulations on the arrival of your Grandson. My thoughts are with you all, at what must be a time of very mixed emotions.

                Last edited by Kayleigh; 21 October 2019, 12:36.


                  Oh Devonmaid, I am so sorry to hear of the loss of your beloved and brave husband Tony.

                  How Poignant that your beautiful grandson was born on the same day. It's so sad that Tony didn't get to meet him but he will bring you all comfort and he will always be a part of Tony.

                  Thinking of you and your family,
                  Love Debbie x


                    I am so sorry to hear Tony has gone, Devonmaid. Thank you for taking the time to post at this very emotional time, it's much appreciated.

                    What a bittersweet day yesterday was for your family, especially for you and Leanne. I am certain your new grandson will hear many lovely stories about his grandad as he grows up.

                    Tony was blessed to have such a loving and caring wife, friend and staunch advocate as you.

                    Wishing you much comfort and support for the tough times ahead.

                    RIP Tony.

                    Look after yourself Devonmaid.

                    Love Ellie.
                    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.


                      You must be going through so much turmoil. Thinking of you all.


                        As a carer for my wife who is now in the palliative stage of MND I admire your resolve, support and tenderness you have given Tony. So often its is a forgotten role dealing with this disease every day. My condolences and love to a truly caring carer and partner. Steve G