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Terry

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    #16
    It's great to hear from you Terry and I'm glad your breathing is good.

    However, it must be very frustrating not being provided with the pain relief or physio you need.

    I hope things improve for you very soon. Hopefully a doctor will soon come on duty, in your ward, who knows what pain relief to prescribe that will work for you and how pain can be managed effectively for MND patients.

    It sounds like you might need much better painkillers and some physiotherapy, like a very good back massage (but I'm no expert!).

    I hope the food isn't the usual NHS's bland menu! - hopefully your wife is bringing in some festive food parcels, so you can keep your stength up.

    It's good to see you are still wearing your Santa hat - it must very handy for pulling over your ears at night, if there are any loud snorers nearby.

    Sending you love and hugs,
    Kayleigh x

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      #17
      Hello Terry. I am sorry you are unwell and suffering back pain. Having suffered my ankylosing spondylitis for about 20 years I know how debilitating and unpleasant back pain can be ( the last thing anybody needs on top of MND ). Before I was prescribed the specialist anti-tnf injections, the main drug for dealing with the pain and inflammation was non prescription ibuprofen.
      I hope your virus and back pain are sorted soon.

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        #18
        Get well soon Terry.

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          #19
          Still in hospital, being better looked after but who knows what crew will turn up.

          No Internet, back still bad and energy levels not always good.
          TB once said that "The forum is still the best source for friendship and information."

          It will only remain so if new people post and keep us updated on things that work or don't work and tips.

          Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

          Comment


            #20
            Hi Terry,

            Sorry to hear that you are still in hospital and I hope they can manage your pain and get you home soon. Here’s wishing you a better 2020 and I will drink a toast to you tomorrow evening.

            Love,
            Barry
            I’m going to do this even if it kills me!

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              #21
              Hi Terry

              I'm also sorry to hear in hospital and by the sound of it not doing tremendously well - I hope things will get better for you soon?

              And if I may Barry I'll join you in drinking a toast to Terry tomorrow evening?
              Warmly


              Andy

              ​Diagnosed 03/2015. One sided limb onset (arm) sporadic ALS/MND. MND hitting - now 50% left arm and 90% right arm, plus other bits including left shoulder

              "Things turn out the best for people who make the best of the way things turn out"

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                #22
                Hi Terry

                I hope you will be home soon, and your getting proper care with good pain management for your back.

                Feel better, you are very missed.

                Much Love CC xoxo

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                  #23
                  Hi Terry,

                  Sorry to hear that you are still in pain. Hopefully you will be provided with some effective pain relief and I hope you will be well enough to return home very soon.

                  Thinking of you and sending you lots of get well wishes and hugs.

                  Love
                  Kayleigh x

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                    #24
                    Hi Terry, thank you for the update but I’m sorry you’re still in hospital and suffering so much pain. I really hope the medics will be able to help you soon.
                    Dina

                    Trying to keep positive, but not always managing.

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                      #25
                      Hi Terry,

                      Been thinking about you so thank you for letting us know how you are. I really hope you feel better soon and you get effective pain relief.

                      Sending you lots of love and hugs,
                      Debbie x

                      Comment


                        #26
                        Oh my days Terry I haven't been on the forum much over the past 10 days and, even then, was mostly on subscribed threads and PMs.

                        I'm sorry to hear you're in pain and in hospital. Hopefully they'll discover what's causing it and address the issue with physio, new seating or whatever.

                        Have you had an MRI?

                        Anyway, sending you a big hairy hug.

                        Love ya X
                        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                        Comment


                          #27
                          Thinking of you Terry, so sorry to hear you are still in pain.
                          All best wishes
                          Sheila x

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                            #28
                            Here's hoping you soon get appropriate treatment. Every best wish for 2020.

                            Comment


                              #29
                              Here till Friday. Pain is less but quite tired..

                              Cooked breakfast this morning in bed, first time for everything

                              After seven days of not going much now very loose and get worried about every fart.

                              Getting some new equipment tomorrow and maybe a longer bed.

                              I am much more able to weight bear safely and pull myself up.

                              Hope you are all well and Cc"s broken ankle is repairing well, I can't stand her continuing moaning. Lol.

                              Better get moving, just drank a Costa coffee that my wife bought in but maybe a nice wine or even a Guinness would be nice.

                              Love Terry
                              Last edited by Terry; 1 January 2020, 15:56.
                              TB once said that "The forum is still the best source for friendship and information."

                              It will only remain so if new people post and keep us updated on things that work or don't work and tips.

                              Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

                              Comment


                                #30
                                Good to hear from you Terry

                                What the kind of hospital you in a Fred Flintstone one that doesn't have internet service ????

                                Haha don't be so smart Mr. SmartyPants and don't get me started on my broken foot again lol

                                Happy to hear your pain is easing up and you'll be home soon

                                Wishing you the very best and a Happy New Year

                                Much Love and big ((( HUGS))) xxoxo

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