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The Gift Of Now - a poem wot i wrote

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    The Gift Of Now - a poem wot i wrote

    Evening all

    I wrote a poem for my wife recently, which she has been pestering me to share - and which MNDA will be publishing in Thumbprint in April. So in the hope that you might enjoy it too, please find it below.

    The Gift Of Now

    When i struggle to stand
    you uplift me,
    when i stumble
    you steady me,
    when i cry with frustration
    you cwtch me close.

    When i can't speak
    you understand me,
    when i mourn last times
    you create new memories,
    when i surrender to my weakness
    you share your unwavering strength.

    when i despair
    you remind me of hope,
    when i stamp with anger
    you stamp back, harder!
    when i close in on myself
    you open your boundless heart to me.

    When i grieve inconsolaby for a future unshared,
    a life unlived,
    a love unfulfilled
    You remind me of the precious gift of now

    Love to you all,

    Well Sarah, I'm so glad your wife's pestering worked !! Thanks for sharing it.

    It's a beautiful poem which, I don't mind admitting, brought a tear to my eye... And I think all of us can identify with its essence and sentiment.

    I hope you continue writing poetry (and sharing them ) you have a talent for it.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.


      Wow, what a beautifully written poem. Made me cry.
      You have a great talent, maybe we will see more of your poems in the future.
      Thanks for sharing.
      Love Sheila x


        Beautiful words and sentiments Sarah,

        I am so glad your wife encouraged( pestered ! ) you to share it with us. It made me cry too but in a very warm and hopeful way. You have a wonderful way with words.

        Thank you,
        Love Debbie x


          Thank you Sarah for such a heartfelt excellent poem. You have a talent for sure x
          ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

          I'm staying positive and taking each day as it comes.


            A beautiful expression of your heartfelt thoughts and feelings. Thank you for sharing your very special poem with us Sarah.
            Kayleigh x


              Just beautiful.

              You're very gifted you could write musical lyrics it was so moving. It reminded me of one of my very favorite lyrical songs 'You Needed Me' by Anne Murray



                Beautiful Sarah! Thank you.

                A real carers' anthem.

                Diagnosed April 2017


                  Thanks so so much everyone! I honestly didn’t share it for the compliments (tho I’ll admit they’re very nice!). Feel free to use it/share with your loved ones as you wish, I’m not precious about it. I just hope it helps people in some way. Xx


                    what a lovely poem , thanks for sharing x