Speech variations

[Lizzie]

I'm newly diagnosed with MND but I'm finding some of the symptoms variable, and have seen nothing in the information I have read to indicate that this is common or expected. I have a number of the early symptoms including fasciculations, weakness and muscle wasting, but I also have a problem with slow slightly slurred speech. Can anyone out there tell me if they have experienced variability with the speech problem. I am finding that sometimes my speech is reasonable, but at other times, especially when I'm tired I sound a little drunk. Does anyone else experience this variability?
Thankyou in advance. I'm feeling a bit unsure about what is happening to me.

[Terry]

Hi Lizzie and welcome to the forum;

Sorry to hear of your recent diagnoses and the problems your having.

I'm afraid that speech problems are very common with Mnd.

You should try and get in touch with A SALT, speech and language specialist as they can help you with things.

As Ellie says below, many of our symptoms get worse when we are tired, I used to have a afternoon little sleep when first diagnosed.

Best wishes, Terry

[Ellie]

Hi Lizzie,

I am sorry you’ve had to join the Forum but extend a warm welcome to you.

I also have a problem with slow slightly slurred speech. Can anyone out there tell me if they have experienced variability with the speech problem. I am finding that sometimes my speech is reasonable, but at other times, especially when I'm tired I sound a little drunk. Does anyone else experience this variability?

Yes, you hit the nail on the hear - being tired makes all symptoms worse unfortunately. That’s why, even at this early stage, it’s advisable to pace yourself and, if you feel tired or over-exerted, rest. You might find you need to up your calorie intake, so do speak to a Dietitian (in your MND Clinic??)

I half hesitate to mention voice banking as you’re not diagnosed, but it is something to consider doing - if your voice were to go completely, it can be used as a voice to speak words you’ve written, rather than using a generic voice. It needs to be done with a relatively strong voice.

For further info: https://static.mndassociation.org/ap...ce-banking.pdf



Love Ellie.

[Sheila]

Hi Lizzie,
Welcome to this very friendly forum, you will find lots of help and advice on here.
Love Sheila.