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    Speech variations

    I'm newly diagnosed with MND but I'm finding some of the symptoms variable, and have seen nothing in the information I have read to indicate that this is common or expected. I have a number of the early symptoms including fasciculations, weakness and muscle wasting, but I also have a problem with slow slightly slurred speech. Can anyone out there tell me if they have experienced variability with the speech problem. I am finding that sometimes my speech is reasonable, but at other times, especially when I'm tired I sound a little drunk. Does anyone else experience this variability?
    Thankyou in advance. I'm feeling a bit unsure about what is happening to me.

    #2
    Hi Lizzie and welcome to the forum;

    Sorry to hear of your recent diagnoses and the problems your having.

    I'm afraid that speech problems are very common with Mnd.

    You should try and get in touch with A SALT, speech and language specialist as they can help you with things.

    As Ellie says below, many of our symptoms get worse when we are tired, I used to have a afternoon little sleep when first diagnosed.

    Best wishes, Terry
    Last edited by Terry; 3 February 2020, 21:38.
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

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      #3
      Hi Lizzie,

      I am sorry you’ve had to join the Forum but extend a warm welcome to you.

      Originally posted by Lizzie View Post
      I also have a problem with slow slightly slurred speech. Can anyone out there tell me if they have experienced variability with the speech problem. I am finding that sometimes my speech is reasonable, but at other times, especially when I'm tired I sound a little drunk. Does anyone else experience this variability?
      Yes, you hit the nail on the hear - being tired makes all symptoms worse unfortunately. That’s why, even at this early stage, it’s advisable to pace yourself and, if you feel tired or over-exerted, rest. You might find you need to up your calorie intake, so do speak to a Dietitian (in your MND Clinic??)

      I half hesitate to mention voice banking as you’re not diagnosed, but it is something to consider doing - if your voice were to go completely, it can be used as a voice to speak words you’ve written, rather than using a generic voice. It needs to be done with a relatively strong voice.

      For further info: https://static.mndassociation.org/ap...ce-banking.pdf



      Love Ellie.
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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        #4
        Hi Lizzie,
        Welcome to this very friendly forum, you will find lots of help and advice on here.
        Love Sheila.

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