
I am now getting the 'if there's anything I can do to help' comments from the family members- this isn't a time for me to be angry, but I am stubbornly saying 'no, thank you' to all of them. If they wanted to help, they should have helped all the way through this horrid disease- I know you guys will understand what I'm about to say. This bit is the 'easy' bit- the hard bit was trying to think of ideas to make Gran comfortable and being there when she was sent to hospital with a very bad chest infection or taking her to the doctors in a wheelchair and trying to navigate the uneven walkways to avoid her foot sliding off the foot rests. Help with any of those things would have been amazing.
I have abided by all of the plans that Gran wanted to have for her funeral and I won't let any 'helicopter' family members take away the final thing I can do for her.
Having said that, I am saying to the family that, if they have any specific (additional) ideas for the funeral, they are more than welcome to share them with me.
Thank you again, my MND family <3 xx
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