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    Kayleigh

    Hi all,

    Has anyone heard from Kayleigh?

    I sent her a pm because I am concerned that we haven’t heard from her in several days which is unusual. She has not replied and I don’t know if the message was received or if Kayleigh is below par.

    Please let me know if anyone has been in touch.

    Barry x
    I’m going to do this even if it kills me!

    #2
    Hi Barry

    No.

    It looks like her last post was on February 10th, which is a worryingly long time ago that I hadn't noticed.

    Thank you for alerting us. I hope she's ok.

    I'm worried now!

    Doug

    Comment


      #3
      I too had sent her a pm because I realised she has been unusually absent from the forum but haven’t had a reply.

      Comment


        #4
        Did Kayleigh mention a holiday or am I dreaming Barry? Lynne
        ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
        I'm staying positive and taking each day as it comes.

        Comment


          #5
          Lynne,

          I don’t recall any mention of a holiday but I may have missed a post.

          Barry x
          I’m going to do this even if it kills me!

          Comment


            #6
            Hi Barry,

            I to sent pm six days ago. No email address shown but you could ask the Mnda moderators to see if they can see if OK and just does not want to speak to you.

            Love Terry
            TB once said that "The forum is still the best source for friendship and information."

            It will only remain so if new people post and keep us updated on things that work or don't work and tips.

            Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

            Comment


              #7
              I've been wondering about Kayleigh too as it's not like her not to be in touch.

              I was hoping she has gone away on holiday as its half term this week.

              Fingers crossed,
              Love Debbie x

              Comment


                #8
                Just wondered if anyone has heard from Kayleigh?

                Comment


                  #9
                  No.

                  But I have sent her a very concerned PM and will let you know the instant I hear anything, if I do. I am very, very worried!

                  It is just conceivable she's taking a fortnight's holiday with no internet. But......the hairs on the back of my neck tell me.....

                  Doug

                  Comment


                    #10
                    Hi,

                    Mnda Connect don't have any way of contacting her either.

                    Love Terry
                    TB once said that "The forum is still the best source for friendship and information."

                    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

                    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

                    Comment


                      #11
                      As yet no reply to my pm either.

                      Very concerned.

                      Barry
                      I’m going to do this even if it kills me!

                      Comment


                        #12
                        Neither have I had a reply to my pm. Hope she is ok.

                        Comment


                          #13
                          very worrying. can mnda make contact?
                          Copyright Graham

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                            #14
                            Hi friends,

                            I may be jumping to the worst conclusion here but if you look at the members list it is showing Kayleigh as N/A and other members showing similarly are deceased. I appreciate MNDA can’t release private information and until a family member posts we have no way of knowing.

                            I hope I haven’t offended anyone with my observation or assumption but my concern is genuine.

                            Barry
                            I’m going to do this even if it kills me!

                            Comment


                              #15
                              No, that's not what it means, Barry.

                              The 'N/A' showing against a Member's name means they have chosen to operate in 'Invisible Mode', i.e. they don't show up as being online.

                              It has nothing to do with being alive or dead, so you can't read anything into it.

                              Love Ellie.
                              Last edited by Ellie; 11 March 2020, 16:11.
                              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                              Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

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