Diagnosis

[Rubyray]

Was just needing some advice, my mam was diagnosed in October last year( you have all been great so far with advice), my mam is complaining of dizziness and balance problems when looking at stuff online it seems to be common with ms, her diagnosis was only based on symptoms and a emg result all her other symptoms are mnd and ms Could they’ve got it wrong ?

[Ellie]

Hi Rubyray,

Sorry to hear your mam is having balance problems and dizziness.

Balance problems are unfortunately pretty common with MND (attributable to upper motor neuron damage) but not so much the dizziness. She should have it checked out in case it's an ear infection, vertigo etc and not MND-related at all.

MS is easier to diagnose than MND and I know your mam is bulbar onset but in MS, speech and swallowing problems tend to come and go, unlike in MND.

Perhaps you could raise your doubts with her Neurologist? You can ask for a 2nd opinion if you're left in any doubt.

In the meantime, your mam's balance problems could cause her to fall so she needs to be careful and get mobility aids, if she doesn't already have some.

How are you coping?

Best wishes to you both.

Love Ellie.

[Rubyray]

hi Ellie
Thanks for getting back to me, she’s already had a fall last week, she’s getting a support for her foot next week we’ve waited since Xmas for this, hospital have given her tablets for dizziness and balance and she says there making her worse, my sister is going to mention ms to her nurse after thinking on it I think they are right it’s mnd you get desperate for it to be something other, Iam coping not to bad at the minute some days it’s horrendous and I feel like I can’t but you’ve got to get on with what you’ve dealt thanks for getting back to me I appreciate it
Love rubyray

[Banned]

hi,

a gene test would be conclusive. In the old days when I was dxed, I was told I had ppms for 2 years. following my gene test, conclusively genetic, however i'm the first known in my family.