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    Sad News.

    Hi all!

    I am Sheila's son Mark and I'm afraid I have very sad news to share...

    Unfortunately, Sheila died yesterday evening 6pm at Weston General hospital. Last Thursday, mum contacted a chest infection. Me and dad took her in and over the following days, sadly
    developed pneumonia. By Wednesday she slightly went downhill so had to wear a huge oxygen mask to help clear her lungs (one of which partially collapsed). The mask was massive and imposing and, even though it was helping control her oxygen levels she absolutely hated wearing it.
    The next day, she refused to wear the mask! And because of that, went downhill pretty quick. And sadly, last night passed away peacefully and painless. Aged 62. Surrounded by family and friends.

    Mum has always struggled with being diagnosed with this cruel, humiliating disease that she simply had enough of it. There was no point in fighting on! It's a no win.

    I do have a sense of pride and respect for mum in that, she decided to end it. That was extremely brave (I couldn't do it) but death was mum's only way of escaping it and if that was what she wanted, then me and dad have nothing but utmost admiration for her.

    We are going to miss her something chronic!! I admit, I have always been a mummy's boy and we always use to chat and banter about football and music. She wasn't just a mum but a mate too!

    She appreciated all your advice and help on here. I know she's made a few friends on this helpful forum. Me and dad have witnessed the hell of this horrendous disease on a daily basis and we have nothing but enormous respect and love for you all.

    Keep up the fight and let's get a cure to eradicate this disease as soon as possible.

    Much love and from behalf of my mum, thank you all xxx.


    Oh my days, Mark, I am so sorry for your loss. Thank you for taking the time to post this sad news.

    I had missed Sheila on the Forum - we often messaged each other - and was going to message her today.

    Your mum was indeed a brave lady and had a heart of gold, I know she'll be missed on the Forum.

    I am so glad you were a Mummy's Boy, Mark - you sound like you've a lovely gentle soul, just like your mum.

    Wishing you much strength and courage over the next few months.

    RIP Lovely Sheila.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.


      Oh Mark, this is such sad news. Thank you for taking the time to tell us and explain the circumstances. I struggle with my diagnosis too a lot of the time and can completely understand her actions but it must be so much harder for you, you obviously have a huge heart - just like your mum. Sending you and your family love and strength at this sad, sad time.

      Sarah xx


        Very sad news, please accept my condolences on your loss. Your love and respect for your mother shine through every word of your post and I am sure she was hugely proud of you.


          Oh no Mark, this is such sad news.

          I am so very sorry for your loss. Your mum was a lovely brave lady and I am sure she was a wonderful wife and mother. You are a son to be proud of and I hope in time you will find comfort in your happier memories.

          Thank you Mark for letting us know and I wish you and your Dad strength in the months ahead.

          Love Debbie x


            Thank you all so much for your condolences! I have passed them on to dad. We are going to miss mum terribly but it was mum who had to live with this not me nor dad. However, she fought this disease with dignity until the very end.

            I will probably pop on here from time to time under my mum's name to check up on you all and to ask questions myself over time If that's alright?

            Much love and thank you all.



              Good evening Mark

              Please accept my heartfelt condolences for the loss of your mother.

              And of course you can put back in only a mother's name to ask questions if you so wish although I hope we can answer what you ask


              ​Diagnosed 03/2015. One sided limb onset (arm) sporadic PMA/MND - now 90% left arm and 90% right arm, plus other bits including both shoulders and also some breathing issues – Campaign contact Winchester and Southampton branch, and trustee of the Association

              "Things turn out the best for people who make the best of the way things turn out"


                I am deeply sorry for the loss of your lovely Mum xx


                  Hello Mark,
                  I am so sorry for the loss of your mum. She often made kind replies to my posts. I am a mummy's boy as well so I appreciate how sad your loss must be for you. Take care.


                    Hello Mark,

                    I’m sorry to hear about your mum and please accept my condolences for you, your dad and the family. I admire your mum’s resolve to refuse medical assistance which would have only prolonged her suffering.

                    RIP Sheila
                    I’m going to do this even if it kills me!


                      You and your Dad are just as courageous for supporting her throughout and understanding when she felt enough was enough, big hugs


                        I've read all your condolences and kind words to dad and he also thank you all for the supportive messages. Barry52! You are spot on and very well put. Mum knew she just couldn't carry on. Heart breaking for me and dad but the right thing for my mum to do sadly.

                        Once again! God bless you all



                          Hi Mark;

                          Thanks for letting us know about your mum. Sheila played a big role on the forum.

                          Condolences to you, dad and rest of the people around her.

                          I was a bit concerned when you said that she had a mask on but I guess you meant a air assist machine.

                          Sorry for your loss, Terry
                          Last edited by Terry; 1 March 2020, 17:51.
                          TB once said that "The forum is still the best source for friendship and information."

                          It will only remain so if new people post and keep us updated on things that work or don't work and tips.

                          Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.


                            Dear Mark. Thank you for sharing your sad news. I’m very sorry for your loss. Lynne
                            ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                            I'm staying positive and taking each day as it comes.


                              Oh Mark I am so sorry for the loss of your Mum. This disease is pure evil. Sending love and support x