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  • nunhead_man
    replied
    Good morning Terry

    I am also very sad to read this.

    But if you have decided it is your time to go then so be it.

    I hope you have good contacts with your local palliative care team even in this time of isolation and challenges in communication and that they can make you comfortable wherever you want to be

    And I hope if there are things you wish to say to people you are able to say those in some way and much love from this forum to send you on your way

    Leave a comment:


  • miranda
    replied
    So sad to read this Terry. I hope you had a comfortable night. Sending you warmest wishes xx

    Leave a comment:


  • Barry52
    replied
    Oh my dear friend Terry.

    Reading this makes me very sad but I know how much we struggle with this disease. I can only wish that you are comfortable and without pain. You are an inspiration to members of this forum and your humour, advice and compassion are invaluable.

    Love,
    Barry

    Leave a comment:


  • Deb
    replied
    Oh Terry,

    So very sorry to read this but please, please dont apologise. I really appreciate, as I am sure many others do, the sound advice, support, laughs and fun you give to our forum family. I know you have been welcoming new members for many years.

    Thinking of you Terry and sending big hugs and love,
    Love Debbie x

    Leave a comment:


  • Ellie
    replied
    No need to apologise, mate.

    If your body has had enough, the bravest thing to do is to let go - harsh though that will sound to many who haven't lived this very difficult life for years... You and you alone will know what reserves you have.

    I hope you have good palliative nursing care available to you, either at home, in the hospice, or both, and know when to ask for help and support.

    Wishing you much support and love over the coming weeks.

    Big hug,

    Love Chimp.

    Leave a comment:


  • Terry
    replied
    sorry to be so negative but i have had a extremely fatigued sinse November.

    my eyes, brain,memory area not working right. i struggle to eat, drink, eat breath without feeling bloated or sick. i have back and other pains. guess i want to say buy very soon. sorry for you all being left with the chimps advice.

    love TERRY

    Leave a comment:


  • Terry
    replied
    Thanks Andy;

    They are sending me out a mask, don't know what one. Your other one could be quite good being shorter,

    I am quite rough am very tired, finding it hard to ware the mask.

    Been outside this afternoon for over a hour, so nice here.

    Love Terry

    Leave a comment:


  • nunhead_man
    replied
    Hi Terry

    I had the same problem when I started my using my nippy and in fact where it got me was across the bridge of my nose.

    My breathing lot provided me with a slightly different mask that fits under my nose - see

    https://www.resmed.com/en-us/sleep-a...ks/airfit-f30/
    Last edited by nunhead_man; 24 March 2020, 11:31.

    Leave a comment:


  • LesleyJ
    replied
    Hi Terry

    My Mam has the same issue. She has tried a few masks but they don’t seem to work so always reverts back to the original one, however it really hurts her nose. She now has a boomerang strip for her nose and it seems to be working. Hope you get sorted soon x

    Leave a comment:


  • Ellie
    replied
    Yes I heard smooth faces get better seals. Sorry the cat has lost his whiskers

    The straps can be snug, rather than tight, but they shouldn't hurt.

    Leave it tonight, give your face a rest! And you feel 14 6 is better for you than 12 3 - not too strong, forced or distracting??

    I'm glad you got NIV anyway - be prepared

    Hope you get a good sleep tonight.

    Love Ellie.

    Leave a comment:


  • Terry
    replied
    My over night at hospital was set at 12 3 so maybe in order to seal 14 6 I tightened it to much. Have since cut my wiskers off but doubt I'll be wearing it tonight.

    The size is Large.

    Shame, Terry

    Leave a comment:


  • Graham
    replied
    hi terry,

    further to ellie's good advice, the mask may need subtly bending to relieve the pressure points. guessing that cotton wool may relieve pressure.

    love

    Leave a comment:


  • Ellie
    replied
    That's a nice mask Terry, generally quite comfortable.

    It could be the wrong size but you were probably measured for it in Papworth - what size is yours? The mask rim shouldn't sit on the side of your nose. (There is a sizing template on their site)

    Or maybe the straps are just a tad tight?

    Do contact them if it's still causing soreness and ask them to post you a different size or a different mask brand to try. If you can wear nasal masks, that should get over the big honker you have but not everyone can wear nasal masks.

    As a short-term measure you could try putting plasters on your skin for padding - my nurse gave me Duoderm Extra Thin plasters which didn't interfere with the air seal. Creams, including barrier creams, can damage the rubber so are not recommended.

    You'll get it sorted!

    Take care.

    Love Ellie.

    Leave a comment:


  • Terry
    replied
    Hi Graham and Ellie;

    Thanks for the link.

    I think that the Pressures seem ok' my nose is quite wide so it's the sides that are feeling bruised and not the top.

    this is the mask i have, Airfit F10,

    https://www.sleep-tight.co.uk/resmed...ce-mask-system

    I think the pressure is set ti 14 6

    Love terry

    Leave a comment:


  • Ellie
    replied
    Hi TC,

    Is it the mask causing the problems rather than the Nippy - as in, does the air pressure feel OK?

    If it is, what mask is it - does it look like this?

    JOYCE_SilkGel_Full_Face_Lowenstein.jpg

    Love Ellie.
    Last edited by Ellie; 22 March 2020, 12:51.

    Leave a comment:

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