Hi I just feel the need to put pen to paper .... I was diagnosed with MND in 2017 after being tested for about 18 months to find out what was wrong with me, I was having trouble to climb stairs and walking. I find my journey difficult to accept as I have always been fit and healthy.... why me. I can no longer do the things I love .... for example walking, driving, swimming, pilates and gym let alone trying to wash and dress myself. These are things I took for granted and now all I can do is sit and watch tv, I can’t even cook and clean the house anymore. Everything is such hard work and exhausting for me. I had a good job in London but can no longer travel or do my job. I have weakness in my arms, legs and stomach. I know I am not alone in this but I just find it all so difficult to accept when I had a busy life ....., I want to be me again !! The way for me to get out is on a motorised scooter... which isn’t how I planned my next chapter in life. I am 58 and struggle everyday. I have family and friends but to go to restaurants etc is very difficult for me to get out of chairs and using the bathroom. I feel so angry at times and sad.
Thanks for reading my story 😓 all the very best
Madge
Thanks for reading my story 😓 all the very best
Madge
Comment