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    #16
    Hi Panniertank, not noticed you about lately until this thread. Is everything ok? Lynne x
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
    I'm staying positive and taking each day as it comes.

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      #17
      Hello Hayls
      What a difference a day makes 🥶 my HSL chair I love as it enables me to get out of the chair on my own x my own bed is comfortable I love going to bed so I can stretch out but it’s not very good to get me up and out of bed x enjoy your furniture when it arrives x likewise if I find garden furniture I will let you know. Stay safe and stay young x

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        #18
        Hello Lynne.Yes, I am ok. My MND symptoms seem to be progressing slowly. I hate being stuck in my house all day ( even before coronavirus ), especially as Spring was one of my favourite times for country walking and going to steam galas. But I am just about maintaining my independence. I have been struggling to do my food shopping on line but my social worker has provided help and now a specialist care company will do my food shopping for me. Just before the CV lockdown the builders finished converting my garage to a wheelchair accessible wetroom. I received very concerning news yesterday. My totally paralysed brother in law has gone into hospital and has been diagnosed with coronavirus. My sister also feels Ill and has some of those symptoms so she probably has it as well. They both have relatively mild symptoms ( he is taking oxygen but he is not on a ventilator) so I hope they will be ok. I am also concerned for my mum who is in a care home.
        Thank you for asking about me . I hope you are ok. Take care.

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          #19
          Hi Panniertank. Thanks for the update. It’s great that you now have a wet-room conversation. I hope that your mum stays safe. You must be very worried since all the sad news from care homes. I also hope that your sister and brother-in-law recovers quickly.

          I’m glad that you have got help for shopping. I got priority with Asda and a weekly regular slot up to October. Sainsbury’s contacted me too offering me priority but I’d already sorted my priority with Asda. The Government has unusually ticked a box there. I wish that they could be as good getting enough PPE to where it’s needed and have much more testing.

          It is hard staying in and as you’re alone harder for you than it is for me. But I feel jealous every morning when Steve goes out for his (7 - 8am) stroll around the local woods. The recent sunny warm day was particularly difficult for me. We have a very small back garden space but we have to cross the upstairs flats approach to their garden space to get to ours. They filled their space with a trampoline months ago so when they were sitting out it was across the shared path. I couldn’t have got passed. I wouldn’t have wanted to either because of the noise being made. They had music blaring out, too loud and not our choice. I’m looking forward to warmer weather then if I get out for an hour or so I’d be happy.

          Stay safe, love Lynne x
          ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
          I'm staying positive and taking each day as it comes.

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