Hey guys, new home no reliable internet. I took the plunge this morning and ordered an adult bib! I'm tired of having tops streaked with stains! 😊🤔😂 This really is returning to the cradle! Love to you all Matthew x
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Oh, I was wondering why you were so quiet - I kinda missed youIf it weren't for the Lockdown, I'd have thought you'd hightailed it to Barbados
Whatever works for you, Matthew, there are no right or wrong ways to deal with things.
Love Ellie.βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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I just found your post Mathew. Nice to hear that you’ve moved as you explained recently. I hope that it all went well. Happy New Home.
About soiling tops when eating. I’ve started to wear my ikea green striped cooking apron. It’s made in such a way that I can pull the cords until the apron is high enough on me to catch drips etc (it’s b not real cord but made from the same fabric as the apron). This works for me practically and psychologically. But it needs washing frequently and if it’s not dry a te towel or kitchen roll does the trick. Love Lynne xLast edited by Lynne K; 11 June 2020, 16:22.ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.
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Hi the move went very well. I have gone mad buying stuff and as I know I'm rubbish at cleaning I invested in a robot vacuum and a bin for the kitchen that opens and closes by itself! Only 8 days until I will be here every day. Connection problems apparently cannot be fixed just by money xxxxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx
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Hi Matthew,
Happy New Home from me too ! Buying new stuff is all part of the fun so enjoy !
Hope you get your internet sorted soon so you can settle in properly. I know how frustrating it is as my son and his girlfriend are waiting for internet connection in order to move into their new flat. As he is working from home at the moment he can't do without it.
In the meantime take care and carry on spending,
Love Debbie x
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Thanks guys, I have to report that having used my adult bib for a few meals i cannot praise it high enough; I have breakfast milk for breakfast, then cream of soup for lunch and for dinner excellent meals from Oakhouse foods and Wiltshire Farm foods soft bite or minced and my clothes stay clean.
If you have my condition then get one. Pride comes before a fall!
And speaking of boobs I never thought I'd miss my man's boobs! xx
P.S. I didn't eat this well when I was well! xBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx
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