Hiya i have been putting it off asking but is any ladies going through the menopause and how are you dealing with it and MND 😖 x I don’t take any medication for the menopause but I have suffered with the menopause for about 6 years and it’s so debilitating when I get a flush 🥵
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Madge, well gone for me. I remember when it first started I was in bed (when I was about 49) and got the feeling that all the skin on my body was white hot. So I ran to the shower, put in on cool and stayed there until it had passed. This was a nightly occurrence for a while. During the day when I got similar but not quite so bad I had to take all of the things that I had on top off. Then me or my husband would fan me. He brought our big table top fan out of the loft. That was a godsend. About 5 more years of flushes etc But I had HRT for 2 years at the beginning that helped a lot.
How the hell can you girls still having these kind of symptoms cope with the likes. Maybe a good table top fan during the day and a floor type fan for night times. You’d need a very understanding carer to undress you and dress you again when the furnace has died down.
I wish you much good luck Madge and others, love Lynne xALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.
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Lynne thanks for your reply. I find it too much hassle to get undressed so usually sit and suffer until it passes x the fan is a big help during the night x the flushes exhaust me x I have not used hrt because at the beginning I didn’t want to use it but I am wondering now whether I should but not so sure now with all the medication I am on x it’s so much to deal with and everything else 😥
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I have it all ahead of me. Am dreading hot flushes - I'll have to grin and bear it as I've no useful hand or arm function so if HRT patches stop them, count me in!!Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Madge, I remember buying wholemeal loaves with linseed in and eating soya products since Linseed and Soya are phytoestrogens. Google phytoestrogens and see what else to try. Good luck, love Lynne xALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.
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