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    Hot hot hot

    Hello MND colleagues

    i wonder if anyone else is suffering from he heat. it seems to make my symptoms quite dramatically worse...

    #2
    Hi Cocoa and a warm welcome to the Forum.

    Yep! The heat absoluely wipes me out and makes me weaker - just drains me completely, making everything seem more difficult I managed about 10mins outside today before admitting defeat, came indoors and opened windows and doors to try and get a cross draught

    We have to keep hydrated too - dehydration can happen quickly.

    Roll on autumn...

    Take care, stay safe.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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      #3
      Hello Cocoa
      Heat is definitely affecting my MND, I invested in a Dyson Airflow fan, it makes the air feel not so stuffy, it’s working a treat for me and keeping all blinds and windows closed, hope you find something that works for you xxx

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        #4
        Hi it’s weird as the cold makes me feel worse, I get stiff. The warmth makes me feel better but the extreme heat exhausts me and I need cold air. I am also menopausal which doesn’t help matters x

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          #5
          Hiya
          It's wierd, my legs are ice cold in winter, but my walking better; in the summer my walking is worse, but my legs feel nice and warm....can't win!

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            #6
            I have come to measure the days heat with my feet. Throughout the winter they were painful icicles but with the reasent warm weather I have not used my micro wave slippers for days! I guess next winter it will be more than my feet! Love you all x

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              #7
              Yes, in general the cold makes our muscles have a higher tone, which gives them some strength from their rigidity - a bit of a Brucie Bonus from having unbendable legs
              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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