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Back again -sorry to ask for advice

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    Andy what is your current body weight and BMI?
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx


      Originally posted by matthew55 View Post
      Andy what is your current body weight and BMI?
      I am a Big Chap Matthew 23 and a half stone and BMI around 40


        Originally posted by Ellie View Post
        That's a question for your (highly trained) Neurologist.

        Is the Neuropsychiatry appt to do with the FND diagnosis?
        Not sure Ellie -think they are just fobbing me off and keep going back to the anxiety status ,its the reduced recruitment that worries me


          Hi Andy

          I am sorry to hear that your symptoms are still concerning you. There is no one on this forum who is qualified to look at your reports and give their opinion. I have to stress that you should be cautious about posting medical reports online to seek opinions as this could easily result in you receiving mis-information which isn't going to be helpful.

          I also can only reiterate the information that I gave you previously. Your symptoms and the length of time that you have been experiencing them do not suggest that you have motor neurone disease (MND).

          You've seen 6 neurologists at some of the top specialist centres for MND. You really do need to listen to what these specialists are telling you and take their advice.

          I know that once you are concerned about a disease like MND, it is incredibly hard to put those fears to rest but you need to start to focus on what those 6 specialists are telling you.

          If you want to discuss this further then please do feel free to give us a call on 0808 802 6262.

          Best Wishes

          MND Connect Adviser
          MND Connect
          Contact us on 0808 802 6262 or at [email protected]