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    #46
    Originally posted by matthew55 View Post
    He told me that because of Covoid Botox is not happening
    Huh, I wonder why 🤔 Doesn't the physiotherapist in your Clinic do Botox?

    If you do get radiation therapy, make sure the person knows exactly what they're doing...
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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      #47
      What clinic? Oh and someone from Christies is going to talk to me. 😊

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        #48
        The MND Clinic.

        Is the radiation being done in Christies?
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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          #49
          No one was told me anything about an MND clinic, and yes 😊x

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            #50
            Don't you attend the MND Clinic in Salford Royal or where is your Neuro based?
            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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              #51
              That's who I was talking to today. 😊x

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                #52
                You'll be in good hands at The Christie, matthew55 . I worked there for over thirty years. Excellent hospital.
                Each day is made easier with a bit of humour.

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                  #53
                  GaryM Not that you're biased or anything 😁
                  ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                  Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                    #54
                    jd58 John, if you can't get the meds right, Botox works well for many people, so keep that in mind too.

                    Love Ellie.
                    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                      #55
                      Originally posted by Ellie View Post
                      GaryM Not that you're biased or anything 😁
                      Not in the slightest biased. 😉
                      Each day is made easier with a bit of humour.

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                        #56
                        Thanks Ellie,
                        Its sorted now I can speak again. Voice box just about cleared of mucus and saliva so can speak again. Sleeping better now too with ventilator slot less saliva being produced.
                        regards
                        john

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                          #57
                          That's great news John, you must feel like a new man - long may it last!
                          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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