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    #16
    matthew55 So, was I right or was I right? 😋
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

    ​

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      #17
      Ellie you are our inspiration to live. Stay as you are for as long as you are able. Love IS real. x

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        #18
        Dear Matthew, nothing could be worse than what you and your wife experienced. Thank you for being so open. Nothing could hurt more and it is very understandable sadness can have no meaning now. Ii is wonderful you can still be in love w joy and happy endings

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