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    Starvation

    How long is it if you don't eat before, well you know.. Still PEGless ☹️

    #2
    i have no idea. suppose it depends on how big your last meal was. so you still haven't been sorted out? thats terrible.

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      #3
      I can't eat with my mouth anymore and it seems not to be a big issue. But I'm used to it, when I was unemployed I was banned from the local food bank for eating too much. Life? You can keep it. 😀x

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        #4
        I can't believe you can't get spares. I'm stuck for words

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          #5
          It's okay really I've known for years that THEY would prefer me dead.😀x

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            #6
            Oh stop being such a Drama Queen 😂😂

            Did you manage to contact anybody yesterday? If you're still not getting anywhere, maybe email MND Connect to see if they can assist.

            As for death by starvation, it'd probably take weeks, but water is a different matter - mind you, today you can just stand outdoors, hold up the feeding tube and see what you catch.

            Seriously Matthew, get it sorted ASAP anyway possible.

            Love Ellie.
            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

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              #7
              If nothing else I am trying! 😀x

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                #8
                You tell him Ellie

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                  #9
                  ☹️😉😀x

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                    #10
                    the only good thing about a RIG instead of a PEG is they send two spare tubes every t 3 months just incase the balloon fails, phew definetly fight to always have a spare. Go get them tiger

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                      #11
                      I know your PEG is “broken” but which part? Or have I missed something?

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                        #12
                        Don't worry I have sorted it. It's the PEG end and whatever way you use it the thing twists. Spares are very easy to fit just hard to find it seems! 😊x

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