To talk or not.

[Stonehengeman]

Sorry to hear that, Matthew. I also have lost my speech., but I can still swallow. I had a tube fitted over a year ago but other than flush it every morning I have made no use of it.
To communicate I use a boogie board. I have not felt comfortable with using the computer for that purpose. With my family i use facetime .
Many business organisations have a "chat" option which I find very useful.

[denise]

hi ellie
i was only kidding. i love his voice really. just sometimes he says things that most of us just think about saying but because we are polite we keep quiet.
as yet the doctor hasn't brought up the subject of speech therapy so that is another one on my list. his voice is definately not what it used to be and i know if i bring it up with the doctor stephen will say, like he says everytime, i'm ok dont worry about me. then i wonder why i am trying to help him at all.
i looked at the portuguese version and they want E30 for joining so i might contenplate that one a bit longer. think i will contenplate the voice banking thing as well because it will be up to him to decide what he wants to do.
thanks for your help with everything ellie.
xx

[matthew55]

Please be aware that in January this year I went to my GP as my voice had changed. Today those who know me cannot understand me. Time is not our friend. x

[Kevinp2109]

Hi Denise

I am using Speakunique which has the repair function which costs £250 and you can download the app for free to use with your recorded voice.
In my case the cost was funded by MNDA.
My voice is slowly deteriorating so happy I have banked my voice before it gets too bad.
With the software you can create your own phrases and words that you more commonly use. These are stored for you to select rather than typing them.
Hope this helps.

Kevin

[matthew55]

Sadly I didn't like my voice, although others did. The problem isn't the voice it's the time taken to communicate and people's ignorance when confronted by disability. ☹️

[denise]

Thanks everyone I shall sit him down and talk to him. If he gives his usual response I shall .

[jomo]

Hi Matthew,

Hope this helps.

My partner has PBP and we have done the following:

We started with voice banking and used Model talker and Predictable. Not very effective and Predictable was £159. We then started using the free Apps and they were OK. We have recently been using Speech Assist which is the best we can come up with at the moment and we use a blue tooth speaker. The great thing about Speech Assist is that it has a bank of commonly used phrases that you can add to and a loud bell which tells everyone to stop and listen. It's the best we have found so far and works better on an IPAd. It costs £14.99 . We are constantly reviewing and looking for better stuff.

[matthew55]

Thank you jomo I will investigate 👍😁

[matthew55]

I just got it and I'm impressed 😊

[miranda]

I’ve been unable to speak for ages (before voice banking) and have tried many speech apps. Now I’m using Speech Assistant which is fantastic, brilliant andbetter than any others. Thoroughly recommend it. It’s easy to save phrases and simple to use. (I’m not on commission!!!)

[denise]

I shall definitely give this a good look. Thanks everyone you're all brilliant xxxx

[petermessi]

My friend faces same problem.He used to solve his problem in his work by sending messages and online chat through his smartphone to the clients rather than by his voice

[Bexxy]

Hi Matthew,

Hope this helps.

My partner has PBP and we have done the following:

We started with voice banking and used Model talker and Predictable. Not very effective and Predictable was £159. We then started using the free Apps and they were OK. We have recently been using Speech Assist which is the best we can come up with at the moment and we use a blue tooth speaker. The great thing about Speech Assist is that it has a bank of commonly used phrases that you can add to and a loud bell which tells everyone to stop and listen. It's the best we have found so far and works better on an IPAd. It costs £14.99 . We are constantly reviewing and looking for better stuff.

Is this any use if you have no use of arms? My husband has just submitted his voice banking and today we listened to the voices to audition and we couldn’t understand a word of it. Pretty gutting as his voice is now not good enough to bank so can’t start over.

I read of a lot of technologies that you all use but my husband hasn’t really tried anything. He has gone from spending hours on his phone to not using it. The only thing he does now is watch tv from when he gets up to when he goes to bed. This is a man who couldn’t sit still even on a beach holiday little more than a year ago. Very saddening to me.

[denise]

Oh Bexxy
My heart breaks for you both. My husband can still use his hands so I think it's being able to use a finger at least. Though saying that my son is bringing it out to us in Portugal because it's not available here to download. I know Matthew has just got it so we shall wait to hear what he's been up to. My husband loves his music and singing along 😐 but at least he's happy xxxx

[matthew55]

It's great but I'm stubborn and still try and speak first!😊x