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Is working a good idea?

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    Is working a good idea?

    I have been on Furlough for ages and now my work wants me back. While I have missed the people I haven't missed the job so do I go back or do I spend spend my remaining time enjoying myself? πŸ€”x
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    Can you go part time? Meeting people and getting out lifts the spirits and keeps you active. I think only you can decide. If you dislike it and it makes you depressed then obviously no. Guess the wage would be handy.
    when i can think of something profound i will update this.

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      #3
      That's part of the problem I don't need the money. Damn the pandemic πŸ˜„x
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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        #4
        Is your employer fully aware of your health and is the workplace a safe environment? Matthew if you want to fulfill your day then as Denise says the social interaction may help. Another point to consider is if you are claiming benefits then how will a return to work impact. I wasn’t aware that my employer had critical illness insurance so it was a pleasant surprise to receive part of my wages when I retired early. Like you I missed the people I worked with and it took me several months to get over that but whilst you remain mobile you eventually find a different circle of friends.

        If you do decide to return to work then remember to ask for overtime since you don’t need a lunch break (peg) lol.

        Best wishes,
        Barry
        I’m going to do this even if it kills me!

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          #5
          Hi Barry,
          I have told them about my condition since before my diagnosis and before I left I was having longer breaks to enable me to eat. I have an assessment on Monday and on Sunday I will type up my symptoms. At least my PEG drinks taste better than the stuff they provide! πŸ˜„x
          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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            #6
            Do you want to go back to work Matthew?
            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
            .
            ​

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              #7
              I'm really not sure. I think that I will wait and see what is offered. I'm pretty confident that I will make Monday! πŸ˜„x
              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                #8
                I had my diagnosis confirmed on a Thursday (I knew it was coming) I handed in my notice on the Friday, took 2 weeks to handover my work and was gone - that's what I wanted to do.

                Yep, wait to see what happens next week and then decide. Maybe you'll like having real people to interact with for a while, rather than us faceless cyberfolk πŸ˜… but, as we know, life is too short to do things we'd rather not do.

                Love Ellie.
                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
                .
                ​

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                  #9
                  The imagination is a wonderful thing! 😊x
                  Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                    #10
                    Hi my second post.
                    I have Bulbar ALS and have retired from working full time before diagnosis . I work from home a few days a month doing the books for a Pharmacy. In the period between the work I really feel like not doing it and perhaps I ought to pack it in. But when I actually start doing the work I forget about the condition. The only thing I do miss is the interaction with other people. Hope to keep doing the work to keep my brain working as long as possible and before any further progression of the MND to my arms/hands.

                    Kevin


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                      #11
                      Sadly my voice is so bad now I doubt many people would understand me. But who knows? 😊
                      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                        #12
                        I intend to work for as long as I can, I only told my employer about it about a month ago, and that was because of Covid, As long as I can use a computer I can work.
                        As long as there’s golf and beer I’m happy

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                          #13
                          Mick gave up work after diagnosis, he just wasnt fit enough to work

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                          • But is there something you ALWAYS wanted to do? It is ME time now.

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                              #15
                              Nails and heads Graham. Trouble is I've done practically everything and anything I haven't I'm too old and ill to do. It doesn't bother me at all just is. 😊xx
                              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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