Is working a good idea?

[matthew55]

Dee I hope the people around you realise what they have. If I've learnt anything it is that you really don't appreciate anything until it's gone xx

[DeeH]

When my mum was diagnosed with dementia, I never forget the lovely consultant said, "do you want to waste your energy and time doing a job at 50% using 110% of your energy." She became a campaigner and advocate, learned some new skills and made new friends in the dementia world Thomas worked for himself and we took a year off to we got to the bottom of his health, (not a great idea re:money) but just got PIP award. I am thinking it as early retirement, if we can get by on the money. If you enjoy work that it different, if it give you purpose and they are supportive. I would try part time and not make hasty decisions, go with your gut feeling. I as a wife want to spend time with my husband, looking to move to Wales to be nearer relatives and get somewhere with no stairs. Good luck whatever you decide.

[matthew55]

'She knows me so well' 😊x

[denise]

we will all wait and see what you are offerred but make sure its what you want. if not then dictate what you want and if they dont like it then you haven't lost anything.
back to sitting on the sofa and visiting the fridge

[matthew55]

Nails and heads Graham. Trouble is I've done practically everything and anything I haven't I'm too old and ill to do. It doesn't bother me at all just is. 😊xx

[Graham]

But is there something you ALWAYS wanted to do? It is ME time now.

[shrew]

Mick gave up work after diagnosis, he just wasnt fit enough to work

[Shaun]

I intend to work for as long as I can, I only told my employer about it about a month ago, and that was because of Covid, As long as I can use a computer I can work.

[matthew55]

Sadly my voice is so bad now I doubt many people would understand me. But who knows? 😊

[Kevinp2109]

Hi my second post.
I have Bulbar ALS and have retired from working full time before diagnosis . I work from home a few days a month doing the books for a Pharmacy. In the period between the work I really feel like not doing it and perhaps I ought to pack it in. But when I actually start doing the work I forget about the condition. The only thing I do miss is the interaction with other people. Hope to keep doing the work to keep my brain working as long as possible and before any further progression of the MND to my arms/hands.

Kevin

[matthew55]

The imagination is a wonderful thing! 😊x

[Ellie]

I had my diagnosis confirmed on a Thursday (I knew it was coming) I handed in my notice on the Friday, took 2 weeks to handover my work and was gone - that's what I wanted to do.

Yep, wait to see what happens next week and then decide. Maybe you'll like having real people to interact with for a while, rather than us faceless cyberfolk 😅 but, as we know, life is too short to do things we'd rather not do.

Love Ellie.

[matthew55]

I'm really not sure. I think that I will wait and see what is offered. I'm pretty confident that I will make Monday! 😄x

[Ellie]

Do you want to go back to work Matthew?

[matthew55]

Hi Barry,
I have told them about my condition since before my diagnosis and before I left I was having longer breaks to enable me to eat. I have an assessment on Monday and on Sunday I will type up my symptoms. At least my PEG drinks taste better than the stuff they provide! 😄x